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  • Hi there, I have had really similar experiences, especially also the hand atrophy. Did you manager to obtain a diagnosis? I am also in Germany, so it would be really great to connect. I really hope all is well for you.
    My atrophy looks just like yours, I tried sending you a private message but maybe you haven't got the private message system enabled? If you do, feel free to contact me, we have some similarities in our stories, although my symptoms started only four months ago.
    Scar1
    Scar1
    Can I ask how you are now?
    Hello , sorry for your symptoms i want to ask if you feel something on your tounge like burning or tingling?
    Hi, dear,
    I am here for 3 yers and also have no diagnosis.
    Wasting in tongue, hands all muscles in body and no diagnosis. Slow but unstopable process....
    Can I ask you for contacts for your clinik for neuromuscular disorders.
    I live in EU but in my country there are no such doctors.

    Greetings and wish you health
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