1. A

    Hoping for a little reassurance

    Good evening, everyone, First off, I have been constantly amazed at the grace and promptness with which questions from anxious people here are answered, and in my time lurking over the last couple months these replies and stickied threads have been a huge resource. So thank you! I'm just...
  2. chally

    Chally Erb flies free

    Chally’s spirit left his body as he slept in the early morning hours of Wednesday April 3rd. He continued to live his life to the fullest despite ALS wrecking his body bit by bit. This forum and all of you were so important to him. He talked about this community of friends every day. He was...
  3. K

    Slow or fast progression?

    Hi All, My dad was officially diagnosed with als in March 2018 although he was exhibiting signs as early as May 2017. I remember going to the neurologist for the diagnosis and my dad walked there. Slowly but he walked. Now he can barely walk in a walker. His left side is much stronger than his...
  4. N

    Great people and great charity!

    This is a great idea. I have met the best friend, Steve who created the charity and is the CEO, as well as Mary Grace David's widow, they " rent" the chair to ALS patients for free. If you know any PALS in South Oregon or northern California feel free to give them a shout. They have three...
  5. L

    My Dad Died April 9th

    It has been such a busy time and I hadn't had a chance to post earlier. He was diagnosed 3/23/2017 and progressed rapidly. By May 2017 he was on AVAPS, July 25th he got a feeding tube and by December he had pneumonia and after being intubated for a couple of weeks went home on the Trilogy. He...
  6. tripete

    My confession

    Below is a document that i wrote for seminary some years ago. i still hold it to be true although i think it could have been written more gently. i used the same format as the Canons of Dort, because i believe it can be easier to explain things when you say what you do believe and what you do...
  7. lgelb

    Miss Wheelchair Mississippi 2018 none other than our Forum member Grace89 (who agreed I could share this news here). Congratulations to Summer and all the State winners this year, who will compete for the title of Ms. Wheelchair America (winner pics are on Facebook).
  8. tripete

    Things that you do not hear about ALS

    In June of 2016 I posted a thread about Pain in ALS and how the "experts" tell us that ALS, as defined by the dying/malfunctioning of our motor neurons, is not painful. As time has progressed I have found many other things that "they" tell us are not issues that are. Like Smell, Bathroom...
  9. H

    The strife is o'er, the battle is won

    My beautiful sister died very unexpectedly of complications of ALS in the middle of the night last night. She had just been in the hospital for replacement of her feeding tube, and the Hospice nurse had examined her a few days ago, and no red flags were raised except for the fact that her blood...
  10. AKmom

    It's been awhile

    Hi all! I have been as busy as I can be in life and haven't checked in in so long, I bet most of you don't remember me! Basically as a reminder, I've had pls for about 25+ years, but was dx'd officially in 2009. The road to dx was so rough and caused me to loose faith in the medical system...