1. N

    My PALS is now in heaven

    My love is gone. I feel numb and lost even though I thought I was prepared for this. He hung on so so long, I don’t know how, but he did. This journey has forever changed me and my family. The little ones seem to be coping okay so far (way more clingy though), and I am trying to find a new...
  2. T

    Slipping Away

    Hi all. I feel it wont be long until my husband is set free from the horrid disease. He's been in hospital now for 4 weeks with pneumonia and sepsis and is getting worse. I've no-one to talk to about it, I don't want to be so upset to my kids as they aren't coping at all with their dad's...
  3. Buckhorn

    Just a bit over 4 month's in S/P

    Hi all. Just checking in. Nov. 4th was the 4 month anniversary of Dave's passing. I miss him every single day, but, I will admit ....... less so as time goes by. I think of him, or of phrases he would say, or things I knew he would want to talk about, multiple times per day. I have conversations...
  4. A

    ALS never leaves us

    Hello dear friends. I thought that I would send my warmest wishes to you all on this first day of 2018. I have been absent from this forum as I have been trying to get on with living after Jim lost his battle 10 months ago. I'm so glad that 2017 has finished. It truly was my year from hell. I...
  5. G

    Speech Device for Bulbar-onset ALS

    Hi guys, I hope you are well and coping with any difficult situations that you are currently facing. I am after a recommendation for a speech device for my father, a bulbar-onset PALS. He had a trach inserted 3 weeks ago so cannot speak, but his voice was barely discernible in the weeks...
  6. K

    Recruiting for A Study on Coping

    PARTICIPANTS NEEDED FOR RESEARCH IN TAILORED ENGAGEMENT FOR OLDER PERSONS WITH ALS We are looking for volunteers to take part in a study aimed at understanding how older adults with ALS receive and cope with their diagnosis. As a participant in this study, you would be asked to: share your...
  7. P

    Coping, Just about.

    Hi, I am new to this forum. My Husband Steve has ALS, diagnosed 1/02/2015. Steve had a trach and feeding tube fitted in May. Just about feeling like I am getting my head around it over the last few months. The care involved is incredibly time-consuming and tiring. I feel trapped at times, feel...
  8. Scotiaspirit

    Feeling of hands around the neck

    I require more support for my neck muscles now. Spent three weeks in hospital in June with pancreatitus and enlarged spleen (it happenned just a week after getting my button inserted). I been getting bold headaches in the back right quadrant in my head. My neck muscles are weakening and I get...
  9. R

    11 Months of Confusion and Stress... Please Help

    Thank you all for taking the time to read this. I have been looking for answers and obsessing over how I “feel” for the past 11 months. I am a 48 year old male who has been active and athletic since childhood. I am dealing with some serious neurological issues but I have yet to determine “how...
  10. J

    Please Help Me

    I apologize for the length, but would love to hear anyone with knowledge weigh in on my situation. I am a 28 year old male. About 6 weeks ago, out of the blue, I started experiencing pins and needles in my arms, hands, ankles and feet. For a few weeks that was my only symptom. It subsided for...
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