peppe271
Member
- Joined
- Jan 2, 2017
- Messages
- 11
- Reason
- Learn about ALS
- Country
- CZ
- State
- Prague
- City
- Prague
Hello,
I am 32 and have a small story to tell. As far as I understood (I have no physiatric background, I am a pharmacist) als never sets on with feelings such as "tired muscle", or pain, or different sensivity than before to touch. Also, I think i have understood that it is a "all or nothing" thing, meaning that from one day to other the person will not be able to move one particular muscle anymore. I think also to have understood that twitching can be an ALS sympthom but when the illness is at such a stage that twitching itself would be a secondary symptom.
Hope you can follow me to this point and correct if necessary.
My question is the following: is there any fatigue and pain in ALS,both as early symptom or at a later stage? I am somewhat worried, hence I would like to describe what is happening with me.
Little disclaimer: I understand perfectly that you people are fed up with somebody coming here asking for the symptoms and such.I will be precise and optimistic - no added drama
I've become father of a beautiful little boy last summer, and after one month spent helping my other half (and working in the meantime) I started to feel very tired. That was very unnatural sense of tiredness, one such as when you would not sleep for several days in a row,but affecting just the mind, not the body itself.Would very often wake up during the night completely damp from sweat. Also, would feel twitching on my eye and the vision became "darker" and slightly less definite, with often eye muscles tireness.
After doing a checkup and blood test, included a heart holter,all was ok) I noticed that my walking changed slightly - felt unbalanced and uncoordinated when standing still - I couldn't keep still anymore as before. Sometimes the tireness would be so strong that whenever I opened the mouth I would automatically yawn. Loads of caffeine helped. The "light headed" trip carried on for long until mid december, when I started to feel better regarding the fatigue and the overall feeling, although I noticed spasm in one gluteus if contracted a lot, which would make me "dance" if sitting on a chair and legs heaviness (both).
At this point I decided to go to a neurologist, who did not exactly perform a visit but made some manipulation of my neck bones, which made a funny (and eerie) sound of exploding bones I felt slightly better with my walking, and he prescribed an EMG to the legs (which I will perform in three days.)
During the last holidays, I started to feel twitching at my hips, bilaterally, at my deltoid muscles(both arms) and at both feet.Also, both arms started to feel very heavy and powerless, and while the power came back to the right arm, the left feels often "ants", is in pain, sometimes a "twitchy" pain travels from the elbow to the top of the middle finger, and sometimes feels "numb" under the skin in comparision to the right one.
Also, whenever I try to raise some weights, while the right arm is perfectly fine, the left one feels much more wasted earlier. I can do movements such as turning the key in the keyhole, typing fast with the keyboard (altough left hand is more prone to erros now) and such things. Mobile phone although is slipping often from my hands, even though I think to account this on anxiety which is slowly taking over me.
Knowing your experience, is there that may point to ALS?:roll:
A big thank and hugs
I am 32 and have a small story to tell. As far as I understood (I have no physiatric background, I am a pharmacist) als never sets on with feelings such as "tired muscle", or pain, or different sensivity than before to touch. Also, I think i have understood that it is a "all or nothing" thing, meaning that from one day to other the person will not be able to move one particular muscle anymore. I think also to have understood that twitching can be an ALS sympthom but when the illness is at such a stage that twitching itself would be a secondary symptom.
Hope you can follow me to this point and correct if necessary.
My question is the following: is there any fatigue and pain in ALS,both as early symptom or at a later stage? I am somewhat worried, hence I would like to describe what is happening with me.
Little disclaimer: I understand perfectly that you people are fed up with somebody coming here asking for the symptoms and such.I will be precise and optimistic - no added drama
I've become father of a beautiful little boy last summer, and after one month spent helping my other half (and working in the meantime) I started to feel very tired. That was very unnatural sense of tiredness, one such as when you would not sleep for several days in a row,but affecting just the mind, not the body itself.Would very often wake up during the night completely damp from sweat. Also, would feel twitching on my eye and the vision became "darker" and slightly less definite, with often eye muscles tireness.
After doing a checkup and blood test, included a heart holter,all was ok) I noticed that my walking changed slightly - felt unbalanced and uncoordinated when standing still - I couldn't keep still anymore as before. Sometimes the tireness would be so strong that whenever I opened the mouth I would automatically yawn. Loads of caffeine helped. The "light headed" trip carried on for long until mid december, when I started to feel better regarding the fatigue and the overall feeling, although I noticed spasm in one gluteus if contracted a lot, which would make me "dance" if sitting on a chair and legs heaviness (both).
At this point I decided to go to a neurologist, who did not exactly perform a visit but made some manipulation of my neck bones, which made a funny (and eerie) sound of exploding bones I felt slightly better with my walking, and he prescribed an EMG to the legs (which I will perform in three days.)
During the last holidays, I started to feel twitching at my hips, bilaterally, at my deltoid muscles(both arms) and at both feet.Also, both arms started to feel very heavy and powerless, and while the power came back to the right arm, the left feels often "ants", is in pain, sometimes a "twitchy" pain travels from the elbow to the top of the middle finger, and sometimes feels "numb" under the skin in comparision to the right one.
Also, whenever I try to raise some weights, while the right arm is perfectly fine, the left one feels much more wasted earlier. I can do movements such as turning the key in the keyhole, typing fast with the keyboard (altough left hand is more prone to erros now) and such things. Mobile phone although is slipping often from my hands, even though I think to account this on anxiety which is slowly taking over me.
Knowing your experience, is there that may point to ALS?:roll:
A big thank and hugs
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