I was originally diagnosed with progressive bulbar palsy in January of 2018. At that time we were told that there was an excellent possibility of having several years before things really became troublesome. In April 2018 I had a PEG put in and speaking was no longer a possibility. My legs...
I want to share my story. I have seen many doctors in many specialties (including many neurologists), and nobody can help me. I'd like to ask (1) if this sounds like ALS, (2) if this sounds like another motor neuron disease of any kind, or (3) what else it could be and where else I might look...
Hi there everyone,
I'm a little bit nervous to post this, naturally, and do want to say I hope I'm not upsetting anyone in doing so. The people on here seem absolutely amazing and I'd be appreciative of anyone to give me their personal opinion on this. Thank you so much in advance.
Today I had my remaining crown replaced with a temporary. In two weeks I'll go back for the permanent.
The last thing I wanted to happen was for a cracked crown to break off when I'm not as mobile as now so I had it done.
They had all the info in my chart and there was a new dentist only 28...
Hello to all,
I am concerned about a couple things going on, and hoping you guys would be able to help me, or give me some ideas on my next step.
Everything started about a 1.5-2 years ago. I flew up to Montana for the week to spend time with family. Had a good trip until the end when I got...
Hi guys, it's been 2.5 years since my mom got a diagnosis of probable ALS but cannot exclude MG, it's all very complicated. There was a partial response to medication for MG but there is still progress. Legs are strong and not affected.
Recently they did a SFEMG of the eyes, which showed...
On his first clinic day after diagnosis my dad saw a psychologist who asked him to model how he saw himself in a sort of clay or children doth sort of thing. At the time he could still move his hands a bit but not all of his fingers.
He was surprised to see that his work made him think of...
My husband was dx. In dec. 18 we have very little past family history due to the fact that his maternal grandfather was adopted with no records and his paternal family have all died at young ages ( under 50) except for his father as of now who is 48. Reed is 28 and I am just curious if we...
Hi everyone and thanks for taking the time to read my post. I am currently crippled by the fear that my worsening symptoms suggest ALS. For a time I put them down to anxiety but I can no longer accept that explanation as everything just seems too coincidental.
It all started in August- I...
Hi, first of all - thanks in advance for spending some of your precious your time reading my long story.
I'm 25 and last 3 months of my life was the worst (so far) , fear-ridden time I have ever experienced.
Everything started on the 1st of October with a constant, mild headache with painful...
symptoms of als