First off, my heart goes out to all of you. You are so incredibly brave and generous with sharing your time, experience and support.
My husband walked into a neurologist's office with symmetrical muscle weakness and walked out with a diagnosis of ALS.
Some background -
My husband is 51 and...
2nd opinion
als
brain
death
diagnosis
dying
emg
family
family history
family member
father
heart
lead
mri
muscle
neurologist
night
stress
stroke
support
symptoms
test
twitches
wanted
weakness
hello , my Najib and i have father who's been diagnosed with ALS
recently my father had lost his right hand he can't move it any more , he cant walk without falling too , and now the other hand is going down . i have no clue what should i do to help him out .
the big problem is that the...
Hi everyone.
I apologize in advance for the length of this post. I’ve only been a registered user for less than 24 hours but am really impressed with the empathy and knowledge of posters and moderators. What a fantastic resource. I am on this site to not only utilize the nuts and bolts of...
als
atrophy
back
bed
brain
children
cramping
diagnosed
driving
early
emg
fasciculations
father
fatigue
foot
helpful
hope
hours
medical
muscle
muscle fatigue
neurologist
reading
symptoms
tests
Hello everyone, just want to say I am a firm believer of Jesus. So my symptoms started as having a hard time taking a deep breath and gasping for air. I went to the ER they took a chest xray and said it was asthma, they prescribed me a 6 day supply of steroids and sent me on my way. I took the...
als
back
breathing
concerned
father
heart
life
muscle
muscle twitches
neurologist
shortness of breath
sleep
steroids
stress
symptoms
test
tests
twitches
Matt has been gone four months, and it feels like a lifetime. On the other hand, I think I'm just now mourning what we went through. All the losses that I was unable to mourn because we were too busy trying to live--I think they are battling their way out of the box I locked them in at the time...
Hello,
Does anyone know a good model of disease progression based on ALSFRS-R score? My father was told his score was 38/48, after 2.5/3 years since symptom onset. Could anyone point me to a good resource where rates of progression are plotted?
Hey everyone!
Today my father had a breathing exam and, as it has been the case since he is testes, the results were perfect. In the past two years and a half since first measured, there has been no observable decline as measured by any indication of respiratory function.
Given these results...
This is my previous article link: https://www.alsforums.com/forum/do-i-have-als-als/43074-my-sister-i-have-same-symptoms-same-time-after-my-father-diagnosed.html
Hello everyone, I returned after being diagnosed after 6 months of symptoms and tests. My neurologist concluded MND disease after a...
Hi,
Thank you in advance for your time. I've read many of the posts here and I am in a similar situation.
My grandmother died at age 76 from ALS, and it has given me a lot of anxiety over the past 10 years related to it. I also had a more distant relative (a cousin of my father) who I believe...
age
als
anxiety
clinical
familial
family
family history
father
fear
health
heart
muscle
muscles
relative
scared
shoulder
sleep
story
tongue
twitching
weakness
Dear all. I've been caught into a depression spiral lately. I'm quite stable symptomwise as for now but I'm taking a heavy beating mentally.
The most challenging moments are dusk and mornings just after waking up. There creep the worst thoughts of any day: anger, 'why me', mediations about my...