1. D

    Wholeheartedly Believe It's Bulbar Onset

    Hi All, I sincerely apologise for coming on here again. (Last here in 2012). I just wanted to put my thoughts down into words due to the worry it is causing. Firstly I’m a 34 year old male who is very overweight and leads a very sedentary lifestyle I have had a large variety of symptoms which...
  2. KimT

    Eye Correction

    How many PALS here have had corrective surgery for eyes since being diagnosed? I had to cancel my consultation last week because my dental appointment ran on too long. I had lasik in 2001 but it regressed and now I wear progressive lenses again. I'm hoping to get either lasik enhancement or...
  3. S

    An intoduction myself

    Hi Everyone, my name is Juri. I have been living with ALS for 12 years now, and I had been gone from this site for about ten years, and during that period of time my FRS dropped from 23 to 1. I am on vent 24/7 (with the use of tracheotomy), I use an eye gaze computer for communication, and I...
  4. A

    Tobii with eye gaze

    I've been looking to buy a Tobii with eye gaze technology for my mother who lives in Brazil. Unfortunately her insurance in Brazil doesn't cover this equipment. Any leads for purchasing one here in the USA, would be very appreciated.
  5. L

    Sensory Overload

    Can any PALS explain to me what the sensory overload feels like? My sister only blink yes, no and maybe now. She cannot use her computer any longer as her one hand she had use of is no longer working. The senses she has, she had previously explained are hyper sensitive. So in a room full of...
  6. M

    So worried

    Hi all, I've been having some issues and I'm terrified.. It started about 3 mos ago, noticed twitching in my eye then in my chest, about a month ago I noticed that my right foot and two fingers on my right hand felt "off" my foot felt heavy.. Then twitching started all over my body constantly...
  7. D

    What is latest in eye gaze technology?

    Left arm is nearly useless and right arm weakening. Need to put something in place for communication. I understand APPLE has something in place with their latest IOS devices and associated cameras. Has anyone tried these? What do you and/or your PALS have experience with? Recommendations and...
  8. KarenNWendyn

    Alexa for the technologically challenged

    I am not a techy person, but I do enjoy using my iPad. My hand function is declining. My speech is slightly slurred and nasally, but still understandable. A friend of mine gave me an Amazon “Fire HD 8 with Alexa”, 16gb, for Christmas. I’m embarrassed to say it’s still sitting on my shelf...
  9. chally

    Dry eye

    Does anyone have this issue? The perfect storm of atropine (mucus) Benadryl (sleep) our heating system, learning how to stay hydrated with feeding tube plus slight air leak of my trilogy mask going right to my eyes. Another sh*t storm side adventure to the nightmare. I use lots of eye drops...
  10. KimT

    NEW APP for PALS

    There is a new free APP for iPhones and iPads called "I have voice." The developer lost someone with ALS and decided he wanted to do this. He asked for feedback on the features. It uses eye gaze technology so you need a newer iPhone or iPad. I've not yet downloaded it but will do tonight...