faithandlove
Distinguished member
- Joined
- May 22, 2016
- Messages
- 174
- Reason
- PALS
- Diagnosis
- 06/2016
- Country
- US
- State
- NV
- City
- Reno
Yesterday was a horrible day. I went to my monthly ALS meeting which went well. When we got home, I went right on the ramp on the van by accident and my PWC got stuck between the van and the ramp. I would have gone flying off it if I did not have my seatbelt on. My husband got my manual wheelchair and placed me in it, and then struggled to get the PWC off the ramp without damaging our van. The van and PWC are fine, my husband is not.
I felt horrible, and he was very angry at me. He gets me so nervous that I do everything wrong trying to get in and out of that damn van. I know I have to take my time, and I really do go slow. It just seems to get stuck and then I move in the wrong direction. The E-Z lock is on the passenger side, and it is hard to maneuver it into that lock. I'm getting better, but I go super slow.
Then we have the driving problem. My husband will wait until the last minute to put on the brakes. It scares me and my hands go uncontrollable up and down. He gets so upset with me when this happens. He just started screaming at me, and then he apologized later.
I have no control of anything anymore. I feel like a part of me is being chiseled away each day. I know that my husband is stressed too, and that is why he is so angry. He is usually very easy going, and we rarely argue, so this is new. Chalk it up to ALS that I am working hard to accept because I have no choice.
Thanks for letting me vent.
Hugs,
Deb
I felt horrible, and he was very angry at me. He gets me so nervous that I do everything wrong trying to get in and out of that damn van. I know I have to take my time, and I really do go slow. It just seems to get stuck and then I move in the wrong direction. The E-Z lock is on the passenger side, and it is hard to maneuver it into that lock. I'm getting better, but I go super slow.
Then we have the driving problem. My husband will wait until the last minute to put on the brakes. It scares me and my hands go uncontrollable up and down. He gets so upset with me when this happens. He just started screaming at me, and then he apologized later.
I have no control of anything anymore. I feel like a part of me is being chiseled away each day. I know that my husband is stressed too, and that is why he is so angry. He is usually very easy going, and we rarely argue, so this is new. Chalk it up to ALS that I am working hard to accept because I have no choice.
Thanks for letting me vent.
Hugs,
Deb