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    • If you know someone that battled ALS, please add them here
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NotMyDad

Active member
Joined
Sep 1, 2016
Messages
70
Reason
Lost a loved one
Diagnosis
11/2016
Country
US
State
VA
City
Woodbridge
And I wasn't there.
I spent two months in Poland with him from August to mid October, and then had to come back to the US to work and to bring my kids back to their dad.

My father begged me not to leave.

He prayed for a quick death, and he prayed for an easy death. At least those two prayers had been granted, because his life was just pure torture because of all the choking with secretions and pain from the cramps.

He never even needed his breathing machine. Just the suction machine. (He was bulbar onset.)

He lost his legs when I was there - a few falls did that.
He was still able to write a bit, but his hands were becoming weaker and weaker.

I prayed so hard to be able to be with him during his last moments.

I can't stop crying and I feel I just never will.

I feel like an utter failure. I was supposed to be there.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
15,715
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
I am so very sorry for your loss he is free now and you DID NOT FAIL. Your love and devotion shone through every post and you spent 2 months with him.

I am very sorry you had to leave but it could not be helped and I know your dad understood.

It is harder when you aren’t there. I lost both parents to horrible illnesses after a lot of suffering. My mom had ALS. I was there. My dad had something else. I had left 48 hours for home responsibilities before he suddenly took a turn for the worse. My sister 10 minutes away barely got there. I was in another state not another country but I get what you are feeling. You did your best and it was great. Hugs
 
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lgelb

Moderator
Forum Supporter
Joined
Nov 5, 2009
Messages
13,617
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
I am very sorry.

He knew your love and that you did your best by him. That is the only thing that matters at the end. You were there recently enough for him to remember details of your visit, the touch of your hand, the sound of your voice, and there is no doubt those carried him through his passage.

You will stop crying, I promise, and you will remember him in happier days, and you will be the lighter for knowing he is at peace. Give yourself that time and when you are able, share some of those memories of him with your kids.

Best,
Laurie
 

KarenNWendyn

Moderator
Forum Supporter
Joined
Jul 29, 2017
Messages
3,933
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
City
Southern Oregon
I’m so sorry for your loss.

Your posts have shown your deep love and devotion for your father. In no way have you failed.
 

Narrowminded

Extremely helpful member
Joined
Apr 30, 2016
Messages
2,810
Reason
Lost a loved one
Diagnosis
07/2007
Country
US
State
PA
City
Pittsburgh
I am so very sorry for your loss. I am praying for comfort for you. As the others have said, you DID NOT FAIL your father. You were an excellent daughter and he knew that. Please be kind to yourself during this time.

Hugs
 

Jamie Lee Davis

New member
Joined
Oct 13, 2018
Messages
1
Reason
CALS
Diagnosis
01/2018
Country
US
State
WA
City
Burlington
Wishing you comfort in this trying time.

Rest assured, the grief recedes. Happiness returns. Your memories of him will be happy ones.
 
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beauty4everyone

Distinguished member
Joined
Jul 5, 2018
Messages
264
Reason
PALS
Diagnosis
04/2018
Country
US
State
GA
City
Someplace
*I'm so very sorry for your loss.
*To pass quietly in sleep; knowing you were with him in his mind; his heart; and spirit, is a blessing.
*To have been with him for so long, gave him the gift of your presence, your kindness, comfort, gentleness, and love. You gave him everything he needed for him to be at peace.
* He gave you the gift of knowing he went as he had hoped; quietly, gently, asleep.
* There is no condemnation in his love for you. You, have no need to condemn yourself.
* If, over time, you find it difficult let go - write down all you feel in a letter to him.
* Create a ceremony of forgiveness and letting go. Take the letter outside at night. Say your special words. Put the letter in a fireproof container, (You can add sage or incense).
*Ceremonially set the letter on fire.
*Let the ash and smoke take your words and feelings heavenward. Let it all go.
*From many personal experiences, I can share that grief, in time, lessens. Happy memories become easier to recall. Friends and loved ones help along the way.
*Be patient and gentle with your self. I believe his love for you would want you to be.
May peace abound. Beauty4everyone.
 

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wishmobbing

Senior member
Joined
Dec 5, 2017
Messages
871
Reason
Lost a loved one
Diagnosis
07/2017
Country
DE
State
BW
City
Stuttgart
I'm so very sorry for your immense loss. Don't knock yourself up about being on another continent. Spending two month there was huge for your dad. Maybe it was easier for him to get his wishes granted and slip away in his sleep after you left.
I think you were never supposed to be there. You chose to be there out of love and love reaces across oceans easily.
Hugs to you!
 

ShiftKicker

Moderator
Joined
Mar 16, 2015
Messages
8,049
Reason
DX UMND/PLS
Diagnosis
06/2015
Country
CA
State
BC
City
Vancouver
Oh, I am so sorry for your loss. And I am deeply sorry you have such a regret. I am sure your dad would wish that you didn't, and very much appreciated the time you spent with him and was thankful for every minute you were there. You are a very good daughter and I hope, in time, you will be able to forgive yourself for something you had no power over.
 

NothingButLove

Distinguished member
Joined
Dec 25, 2016
Messages
106
Reason
Lost a loved one
Diagnosis
11/2016
Country
US
State
CA
City
Anaheim
I'm sorry for your loss. It's impossible to control how, when and where someone will die. To die at home in your sleep is really the best we can hope for. You saw your dad recently and he knew you loved him. I wouldn't dwell on not being there at the exact moment. I wish you peace in the coming months.

Rob
 

soonerwife

Very helpful member
Joined
Mar 16, 2016
Messages
1,571
Reason
Lost a loved one
Diagnosis
10/2015
Country
US
State
OK
City
Cleveland
So sorry for your loss! May peace be with you.
 

Angiegal

Distinguished member
Joined
Feb 15, 2017
Messages
309
Reason
PALS
Diagnosis
09/2015
Country
CA
State
Ontario
City
Kitchener
So very sorry for your loss.

Angie
 

Buckhorn

Senior member
Joined
Jan 3, 2016
Messages
730
Reason
Lost a loved one
Diagnosis
12/2015
Country
US
State
PA
City
Small town
I am so very sorry for your loss. Your dad is at peace now. Love & blessings to you.
 
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