breathing

  1. Colleen15

    Breathing issue

    Hi, my breathing is starting to get worse, I use ventilator a few hours a day. I have weird feelings in my lungs, i assume, but I dont know how to describe… a little shortness of breath, some back or chest funny feeling of a little pain and odd pressure? When i use ventilator it helps. Does...
  2. A

    PALS Having a Harder Time Breathing - Would Love Your Thoughts

    Hello Everyone - I posted a few times in the winter soon after my best friend was diagnosed. I’ve been back here to find info many times - which was very helpful! - but haven’t posted in a while. The quick update: P. has lost the use of one arm completely; can still walk, but barely (wheelchair...
  3. C

    Mucus and breathing issues

    We’re entering a very scary and sad stage of my Dad’s ALS journey. Since October 2022 he’s been having coughing episodes. Several a day, lasting an hour or two at a time. At night is the worst. He’ll wake up gasping for air, choking on mucus. My Mom has to take his BiPap off, sit him up...
  4. Tomswife

    First visit to a Pulmonologist in a few days

    Tom PALS will go out to see a Pulmonologist in a few days. He was last seen by an RT at our clinic meeting in November. No therapy recommended. We did attend the Breathing webinar last weekend. Does anyone have advice on how to get the most out of this first visit, other than kidnapping...
  5. L

    On the verge of a breakdown ..all symptoms of Als

    A year ago I started feeling numbness and tingling in my leg and burning sensation in my head I did a brain MRI which showed corticospinal tract hyperintensities which are biomarkers of Als. Neurologists said no Als and related my symptoms to anxiety but symptoms exacerbated a lot.later I began...
  6. R

    Breathing Problem

    My wife sometimes at night or day depends on the position of complaining about breathing problems, always helps open the window, today I arranged for a oxygen concentrator. We don't know anout any result becouse she has stared use from 30min. Are there any other methods to improve breathing? I...
  7. jethro

    Question to bulbar pals

    i'm still fighting. started with a limb onset, spread all over my body, but took only my right foot. by now. maybe my lungs are weaker. it started in oct. 2018. with bulbar - i lost taste completely, continued to cough. it was not having any problems with breath by then, and my cough progressed...
  8. G

    My symptoms

    Hello everyone, my name is Greg. My heart goes out to everyone who has been afflicted with this disease and my thoughts and prayers are with all of you. Also, I want to thank everyone for giving g your time and efforts on posts such as ‘Do I Have Als’ your time and effort is greatly...
  9. K

    Drastic change in breathing

    Hi everyone. My dad was diagnosed March 2018 with ALS. He has limb onset. His breathing, swallowing and talking have not been affected as of yet. ... so we thought. Today he had a breathing test. His score is December 2018 was 92 and today it was in the low 60s. That seems like a drastic change...
  10. G

    Father had Als concerned I do too

    Hello everyone, just want to say I am a firm believer of Jesus. So my symptoms started as having a hard time taking a deep breath and gasping for air. I went to the ER they took a chest xray and said it was asthma, they prescribed me a 6 day supply of steroids and sent me on my way. I took the...
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