Maya77
New member
- Joined
- Nov 10, 2015
- Messages
- 7
- Reason
- Other
- Country
- US
- State
- Ohio
- City
- Cleveland
Hi everyone! I'm new here and scared. Below is a list of dr diagnoses I've gotten--yet no one firm diagnosis yet. Any insight?
1. Weight loss 11/1/14 162 lbs, 11/10/15 120 lbs--without trying.
2. No reaction to babinski test
3. Abnormal Rhomberg
4. Few beat ankle clonus bilaterally
5. Bilateral Hoffman's sign and crossed adductors, worse on right
6. DTR's 3+/4 throughout with flexor plantar responses bilaterally
7. Positive Rhomberg
8. Hyperreflexia and hemisensory loss with FH of MS
9. Tachycardia
10. Parethesias
11. Low creatinine (since 2013)
12. On and off low hematocrit, on and off anemia
13. Lyme Abs IgG/IgM 0.20
14. EMG: small fiber neuropathy cannot be ruled out. Very mild chronic neurogenic change is detected in one foreleg muscle. Isolated mild chronic motor axon loss in left abductor hallucis muscle.
15. MRI of cervical and thoracic spine: slight reversal of normal cervical lordosis with mild dextrocurvature of the cervical spine. Mild levoscoliosis of the upper thoracic spine.
16. MRI of brain: normal parenchymal volume loss.
17. Co2 has been low periodically
18. Urinalysis (multiple) show hemoglobin/blood in urine, red blood cells, and squamous epithelial cells
19. Cholesterol was high one year ago--now totally normal
20. High prolactin
21. Hx of trigeminal neuralgia
22. Hx of dysphagia dating back to 10/09--worse now.'
23. T-wave abnormalities in many EKG's
The above are all doctor diagnosed. My symptoms are so many I can't even list them all, but most notably severe twitching in legs arms abdomen back, muscle (arms and leg) weakness and shakiness, freezing cold all the time, and hands feet and lower legs feel cold to touch all the time. I have fallen 3 times--just standing and lost balance and fell to ground. I'm off balance a lot! Hard to stand for long periods of time. Heart rate is always above 100 when standing even on beta blockers. And much more. Swallowing issues like swallowing while talking etc. drooling (very recent), and drinks spilling out of my mouth while drinking (recent).
I see a second neuromuscular specialist in 2 weeks. What are the chances this is ALS? I'm a 38 1/2 year old female. And a single mom. And scared to death!
1. Weight loss 11/1/14 162 lbs, 11/10/15 120 lbs--without trying.
2. No reaction to babinski test
3. Abnormal Rhomberg
4. Few beat ankle clonus bilaterally
5. Bilateral Hoffman's sign and crossed adductors, worse on right
6. DTR's 3+/4 throughout with flexor plantar responses bilaterally
7. Positive Rhomberg
8. Hyperreflexia and hemisensory loss with FH of MS
9. Tachycardia
10. Parethesias
11. Low creatinine (since 2013)
12. On and off low hematocrit, on and off anemia
13. Lyme Abs IgG/IgM 0.20
14. EMG: small fiber neuropathy cannot be ruled out. Very mild chronic neurogenic change is detected in one foreleg muscle. Isolated mild chronic motor axon loss in left abductor hallucis muscle.
15. MRI of cervical and thoracic spine: slight reversal of normal cervical lordosis with mild dextrocurvature of the cervical spine. Mild levoscoliosis of the upper thoracic spine.
16. MRI of brain: normal parenchymal volume loss.
17. Co2 has been low periodically
18. Urinalysis (multiple) show hemoglobin/blood in urine, red blood cells, and squamous epithelial cells
19. Cholesterol was high one year ago--now totally normal
20. High prolactin
21. Hx of trigeminal neuralgia
22. Hx of dysphagia dating back to 10/09--worse now.'
23. T-wave abnormalities in many EKG's
The above are all doctor diagnosed. My symptoms are so many I can't even list them all, but most notably severe twitching in legs arms abdomen back, muscle (arms and leg) weakness and shakiness, freezing cold all the time, and hands feet and lower legs feel cold to touch all the time. I have fallen 3 times--just standing and lost balance and fell to ground. I'm off balance a lot! Hard to stand for long periods of time. Heart rate is always above 100 when standing even on beta blockers. And much more. Swallowing issues like swallowing while talking etc. drooling (very recent), and drinks spilling out of my mouth while drinking (recent).
I see a second neuromuscular specialist in 2 weeks. What are the chances this is ALS? I'm a 38 1/2 year old female. And a single mom. And scared to death!