new here

  1. M

    Can't tell if this is ALS (27 year old female) scared

    for the last year I've had stomach issues. But that's beside the point. Two months ago all my joints hurt so bad felt like I had arthritis. So after that about a week after it felt like I had broken my wrist or pulled it. Then the pain went away magically and now it's weak. I can still lift it...
  2. C

    Similar as MS?????

    Hi Everyone, I am new here. I have been dealing with neurological problems for 10 yrs had every test done possible and I also saw 10 different drs. I got a Diagnosis in April this yr of PLS. I am wondering does anyone else have relaspes then snap out it?? I am consistent with MS so I would...
  3. R

    I’m really concerned

    Hello everyone , I’m new here and I have some questions that maybe you would be willing to answer or help ease my anxiety. So I’ve had muscle twitches all across my body for about 2/3 months now. I was diagnosed with Prostatitis and ended up on 3 different medications. My anxiety levels where...
  4. A

    New here Help please.. loss of muscle function

    Hi everyone. I am on this form for my Mom who has been going through so much in the last few years. It all started back in Dec of 2016 when she lost all movement from her neck down. (For 8 days) all tests came back normal (MRI, CT scan blood work ect) She has since been losing movement...
  5. J

    Weird symptoms and waiting for more tests what do you think?

    Hi people :) I'm new here and first of all I want to apologize in advance for my bad english but I wanted to share my story with you guys and ask for advice... I'm a 27 years old man in relatively good shape (or used to) but in the beginning of May I had a sudden fatigue and a fever with night...
  6. Doglady

    New-ish Diagnosis

    Hi- I’m new here and was diagnosed 4 months ago. My symptoms started a year earlier! Started with falls then foot drop. Also cramps and fasiculations. It was terrible at first but I’m adjusting now. My ALS clinic is great and the local ALS Association couldn’t be more helpful. I’m on Riluzole...
  7. M

    husband being tested

    hi, i am new here and want to apologize ahead of time if i ramble but i am looking for input on what is going on with my husband. my husband is 40 years old and has had twitching in his arms for over 2 years, he has never thought anything of it just thought it was a weird twitch. in january in...
  8. E

    Question about Symptoms

    I'm new here, and I was hoping to get some input on symptoms I've been having. Starting 2 months ago May 2018 I started getting tingling in my right hand. That was quickly followed by twitching in that hand, the tingling spread to both hands and both feet, then the tingling went away after...
  9. L

    Panicking...how do I do this?

    Hello I am new here so Im grateful to anyone who takes the time to respond. I am not yet a caregiver but will be here soon. My mom has ALS or PLS the doctors cant seem to decide. It is progressing wildly. She is in a wheelchair, has lost fine motor control in her hands and is having trouble...
  10. D

    Possible bulbar?

    Hello all. New here. Don't know exactly where to start so I'll try and give a bit of history before going into what's currently going on. Around 2006 I had a wierd tongue episode. It basically jerked very hard about 4 times and it freaked me out to the point I went to the er thinking I was...
Top