- Oct 21, 2007
- Loved one DX
Mother-in-law just diagnosed, would love some help on a few ? Diagnosed 3 months ago, however symptoms were not pinpointed for nearly a year. 3 weeks ago, got feeding tube and its not going so well.. Gets the jitters after being fed via the tube with the jevity formula given to us.. We are doing all the feedings at home and was so excited to train her to do it independantly however, this has been hampered with the jitters shortly after eatiing. My gut is she is allergic or not a candidate for that particular formula, because when i made homemade soup, she reacted much better. We have a new formula coming by today, ? Have any of you experienced the Jitters after eating ? is this a formual issue, or new feeding tube issue, or part of ALS.. Would love some input, also, cramps in the middle of night - increasing. She is taking in Tonic Water plus a Quinine pill, any hints on real life homopathic treatment for the Cramps.. out there for us to look at.. Again, I am reaching out, because i am finding Docs, dont have all the answers , we need real people living with this to help.. SHe is not one to join a group but loves the idea of getting information from me.. so thanks so much.. she is 75 yrs old. no other issues but the Als ..