candida

Well, damn. My local neurologist, after two months of elimination tests, has now indicated likely NMD, with ALS being the most likely candidate. He basically kicked the can down the road and referred me to Dr. Pulley at Jacksonville Shands. We see him in late April for a second EMG and opinion...

My mom’s FVC was 50% during her initial respiratory evaluation at the ALS Clinic at Mayo. Because of this, she is not a candidate for any clinical trials. She will be receiving a cough assist and trilogy. Does her diminished pulmonary function indicate ALS progression is aggressive? She is...

hello, just curious if anyone is in a stem cell trial or know someone who is and how the progress is. Is it working? I know recently there were a lot of ALS centers in California that were accepting candidates for the trial and really haven't heard good or bad news about it. I had a friend who...

I realize the answer is wait and see the dx, just wondering if I’m on a common path to a diagnosis that others have experienced? I have extreme left arm weakness (can’t lift), and increasing weakness in other limbs + fasciculations + fatigue. EMG by neuro found “active and chronic denervation”...

hello there ! (long read) Here we have a silly nonsense game on tv. It goes like this : there are two teams made of two famous persons and a candidate. They must score points by answering questions that sometimes don't make any sense and are sometimes serious. It is more a pun and bad faith...

"Today Biogen announced it has acquired ALG-801 (Phase 1a) and ALG-802 (preclinical) from AliveGen, Inc. ALG-801 (now known as BIIB110) and ALG-802 represent novel ways of targeting the myostatin pathway, which is one of the most thoroughly studied approaches for muscle enhancement. BIIB110...

Hi, this is probably the wrong place to post this, but I don't know where to put it and am comfortable in the vets threads. :) I am working on estate planning, not because I am in my end game, but because everyone should, incase they are hit by a bus. I apologize that this is a sensitive...

I just joined this site today, and am so very thankful! My Nephew is newly Dx'd ALS, and I am trying to educate myself and my family. I am an HIV/AIDS nurse....but this is a whole new journey. My Nephew has garbled and nasally speech....is he a candidate for Voice Bank, or should he explore...

I am curious if any of you have been obsessed with the presidential race. I have been, probably because I spend so much time on my ass watching TV. It really makes no sense to me as why I have been following the race so closely. My future looks bleak, perhaps it is for my kids and grand kids...

If you are diagnosed with ALS and would like to participate in a 45-minute phone survey to help with a new ALS treatment and earn $100 doing so please submit the following quick survey: https://www.surveymonkey.com/r/DKWNFBV (3 questions) Requirements: You have been diagnosed with ALS You...