feeding

  1. S

    Obi feeding device available?

    Does anyone know how to get an Obi feeding device, on loan or used? I’m told it’s not covered by insurance and it takes months to be rejected. Costs $8600 new. And it will be useful only until feeding tube.
  2. C

    Feeding with BiPAP and RT

    Hi, Do you have any recommendations on how to feed the person while that person is on BiPAP ? Diet is fed via Ryles Tube in puree form. Thank You
  3. KES_SLP

    MGH wants to learn how pALS make decisions about feeding tubes. Survey link included

    Study Purpose: The purpose of the research is to better understand the beliefs, preferences, goals and concerns surrounding feeding tube placement of people living with ALS. Study Eligibility: You are eligible to participate in this study if you are over the age of 18 and have been diagnosed...
  4. KES_SLP

    Seeking People Living with Amyotrophic Lateral Sclerosis (pALS) for Research Study on Preferences for Feeding Tube Placement

    Study Purpose: The purpose of the research is to better understand the beliefs, preferences, goals and concerns surrounding feeding tube placement of people living with ALS. Study Eligibility: You are eligible to participate in this study if you are over the age of 18 and have been diagnosed...
  5. M

    PALS opposed to feeding tube

    Hello, I haven’t posted in a while but my husband was diagnosed august of 2022 with limb-onset ALS. Even though he was diagnosed as limb-onset, it quickly moved into the bulbar region. His left arm/hand (where we thought it started) is now pretty much paralyzed but the main things that have...
  6. M

    What type of feeding tube will give me the most independence?

    My feeding tube will be 7 weeks old tomorrow, and I want to get it exchanged next week. Right now I have legacy 18 French with two ports. I have weak hands. What type of tube will give me the most independence in using it going forward? Enfit button, legacy button, enfit dangler, legacy...
  7. M

    Mini One Balloon feeding tube?

    Compassionate Care (which now covers the whole US) has a new doctor on board who told me that the Mini One Balloon feeding tube is hugely better than Mic Key. Opinions? Also, do I have to get the dangling tube as my first tube, which could be replaced later with button style? Oddly, when I...
  8. ReginaS

    aspirate -

    PALS cannot drink liquids that are too thin and ensure (plus) is somehow too thick and bothers him. He drinks mostly liquids (and occasionally eats some cheese) but yesterday he wanted to try sole (fish). First bite was ok - 2nd bite was very difficult. He coughed and tried to get it out...
  9. ReginaS

    breathing difficulties

    Hi all, My PALS describes that he has the feeling that the air passages in his head (above throat) are not staying open but collapse or close when his head is in certain positions. Do you know what is happening? He is uncomfortable lying down, elevated lying on one side is OK - on the other...
  10. chally

    Dry eye

    Does anyone have this issue? The perfect storm of atropine (mucus) Benadryl (sleep) our heating system, learning how to stay hydrated with feeding tube plus slight air leak of my trilogy mask going right to my eyes. Another sh*t storm side adventure to the nightmare. I use lots of eye drops...
Back
Top