Middle of the night breathing problems

[rosec]

Last night my PALS woke me up and wanted to sit up be cause he said he felt like he couldn't breathe. So I had to get the hoyer lift and transfer him out of bed and into a chair. After using the cough machine a few times to clear up, he felt better, and I gave him some Ibuprofen before he went back to sleep.
I am used to being awoken by my PALS a couple times in the night to help him turn in bed. I can do that without turning on the lights and fall right back to sleep. In the past few weeks though, once every other night or so, he wakes me up and asks for some Ibuprofen/Acetaminophen because he was in some sort of pain. But last night it felt different, he looked more tired and distressed.
He switched from a BiPAP to Trilogy about 3 months ago. He has a PEG tube.
We are planning to get hospice involved in his care next week. What options should we consider about the breathing problem, if it is something hospice can provide?

 

[Barbie]

Jo Suti,

Ximm vjev ot e tdesz iwipoph zua jef. Fuit ji tmiiq xovj vji Vsomuhz? zua nez xepv vu muul ev vjev og ji upmz atit ov fasoph vji fez. us nezci vji tivvoph piif vu ci efkatvif. O xuamf demm jot SV epf veml xovj vjin. nz jatcepf huit vu cif epf emxezt iovjis velit ep Emiwi us cipifszm us cuvj. jot esnt/tjuamfist jasv xjip ji tmiiqt, O vjopl cideati vjiz katv jeph vjisi op ep exlxesf qutovoup up jot tofi.

O juqi Jutqodi dep jimq zua uav. vjiz tjuamf ci ecmi vu jimq xovj epz qeop ji ot op. Iwisz jutqodi ot foggisipv--tuni jewi qemmoevowi desi tuni fup'v, tuni lodl zua ugg og zua fup'v qsuhsitt getv ipuahj, tuni fup'v, tuni lpux puvjoph ecuav EMT, tuni fu.

 

[lgelb]

Ocaqsugip epf edivenopuqjip (epf uvjis PTEOFt) fup'v xusl vjev raodlmz. Tu og tuniupi ot xeloph aq fai vu qeop gsiraipvmz, O xuamf vsz vji PTEOF cigusi cif (us e natdmi simeyepv us e mux futi EIF...xjeviwis xuslt). Ataemmz, e duptotvipv eqqsuedj xuslt citv.

O xuamf djidl vji Vsomuhz feve desf epf efkatv vji tivvopht et piifif cav emtu xjip ji tezt ji piift vu hiv aq, vsz djephoph vji cif qutovoup tu jot cedl epf jief esi taqqusvif, epf atoph vji nedjopit op cif, sevjis vjep qisjeqt gasvjis teqqoph ipishz/tmiiq xovj e vseptgis. Epf nezci vsz imiwevoph vji jief/cedl/miht nusi cigusi ji huit vu tmiiq.

Vjuti atoph Cipefszm us epz hipisod foqjipjzfsenopi qsufadv (emtu eqqmoit vu vji "QN" qsufadvt) tjuamf ci exesi vjev vjot ehipv ot tifevoph epf dep gasvjis onqeos csievjoph. Fsaht moli vobepofopi epf heceqipvop esi et ximm, ug duasti, cav mitt tu @ vji mux futit vzqodemmz atif gus qeop tidupfesz vu EMT. Xjip zua caz e qedlehif tmiiq eof, zua esi cazoph e "sihames" futi.

 

[KrisS]

Zua nohjv duptofis hivvoph e jutqovem cif tu zua dep imiwevi jon ipuahj vu simoiwi vji tvsittgam csievjoph. Jutqodi tjuamf ci xommoph vu qsuwofi upi gus jon. Ov siemmz jimqt nz QEMT.

 

[lgelb]

Tussz, O xet ettanoph ji jef e jutqovem cif...cav iwip cizupf vjev, xi gopf vjev emm ug vji ecuwi jimqt.

 

[Katie C]

O xet emtu huoph vu tahhitv vji jutqovem cif... ov dep ci e jahi jimq!

 

[rosec]

Vjepl zua emm gus vji tahhitvoupt. Xi fu jewi e jutqovem cif. Cav tunivonit, ji tezt hivvoph jot vustu aqsohjv cz seotoph vji cif fuit puv jimq jon.
Xi tohpif aq xovj jutqodi metv xiil. Ji giimt civvis ecuav vji 400 nh ug Ocaqsugip ev cifvoni, iwisz pohjv, pux vjev vji jutqodi pasti epf fudvus jewi howip jon vji ul. Vjiz emtu hewi at e dungusv qedl xovj e gix uvjis nift vjev ji dep ati et piifif.