1. B

    Panic attacks

    Hi Everyone, Been a while since my last question. Hoping someone can help us out or guide us. My dad is in the late stages of ALS and is now living in a residence and having multiple panic attacks per day. This has been going on for the last 2 weeks and he is being brought back and forth from...
  2. D

    Repeated denials for in home services

    I’m at my wits end here. PALS has almost no functional movement aside from head/upper torso and a few fingers. He uses his bipap about 20hrs a day. He can be left alone for an hour or so if he’s reading a book on his computer but he can’t move his hands so he’s stuck there if I’m not home...
  3. Kristina1

    having to cough up secretions after lying down

    Lately I have to cough up secretions after laying down with the bipap all night. I am not sick and do not believe im getting sick. Is this because the bipap prevents normal clearing of secretions you might do in your sleep (throat clearing or grunting?). Basically im wondering if bipap is...
  4. I

    Facial muscles

    I was diagnosed with progressive Bulbar Palsy I. January 2018. Although I could no longer swallow or speak by April of 2018, a PEG. helped and things were ok until Christmas of 2018. My limbs are weakening but I’m making the best of that. My biggest worry is my eyes. Even after sleeping well...
  5. V

    First ALS Clinic Visit

    Yesterday we had our first ALS Clinic visit. I think my PALS was overwhelmed by all of the people. He says he is very tired. He was diagnosed 3 1/2 years ago but was pretty much on a plateau until about 2 months ago when he seems to have fallen off a cliff. For the first 3 years his left...
  6. D

    Trilogy in Hospice??

    I recall seeing a couple of posts saying hospice is not a possibility if one is on a BiPAP or CPAP. Is that correct.
  7. worrieddaughter77

    My dad is still kicking, but recently got the flu.

    Hello, Sorry I've been away from the forum for a long time. Two teenagers, one baby, and full time care of my dad (shared with my mom) was tough.. And then... We decided to move from the USA to Finland. It was my husband's idea actually... He dragged us in June 2018 because he thought we could...
  8. Vincent

    Nose bleeds.

    While this is usually used in reference to where I sit at ball games, I have issues with my nose bleeding or there is blood when I blow my nose. I use a bipap at night and more during the day. Yes I have a humidifier attached to the bipap. Is this just a thing that goes with bipap or has someone...
  9. Kristina1

    spastic gait, walking on forefoot/toes

    The main reason I use a walker at home, wheelchair out is my spastic gait makes walking very difficult and a huge fall risk. My spasticity is such that I can't put my heels down when I walk, I walk on the front of my feet, almost on my toes, and put my weight on the outer sides of my feet. At...
  10. K

    BiPap: Possible to Have Too Much Air?

    My 87 year old mother just got her BiPap machine four days ago. Therapist set it up for her, and the rental unit relays info by wifi to the therapist's office, and he can control it remotely. She felt like it was blowing air too harshly into her lungs over the weekend, and I asked him to dial...