Trevor49
Member
- Joined
- Aug 8, 2014
- Messages
- 23
- Reason
- Other
- Diagnosis
- 12/2015
- Country
- CA
- State
- Ontario
- City
- Cambridge
Hi I've posted for several years fearing I had als . The last year I've been dealing with weakness and other issues. The doctors put it down to Dermatamylostis. Upon EMG they say they hear inflammation and it's not als . End if April I started experiencing new things like weakness in neck and legs have always been week. Fingers as well. As days progress getting up from chair gets more difficult . My breathing is heavier . I usually weigh 185-190lbs. Today I weigh in at 134 lbs and very week. Hsnds can hardly move. 3 weeks ago the Rheum seeing sent up an spot with a neuro that studies als . Thrvrheumy wsnted to confirm a Derma as the bloodworms didn't show anything to determine derma so that's the reason for appt. the neutron looks at file of me being FC with derma in Mar2014. Does ncv first which I believe was fine. Then does EMG sticks needle in my shoulder and says that's inflammatory not als . My wife is with as she has been on every appt. Rheims convinced derma been on steroids for 3 weeks only gets worse. . Hands are do week neck is tight. Have swallowing issues . Don't hzvd appetite. . My legs shake in bed. I have zero left in my butt cheeks which went first. This is where I sig now . Even my wife snd son see me very skinny round shoulders skinny arms snd can't walk well my legs were the strongest . I also hZve 0 stomach muscles . My family thinks I need to committed plus they say I derma and yell sh me about it . My ride calls md sn idiot retard mental case. My family doctor won't refer me to an als specialists in Zlondon Ontario as I called them and them will see with a doctors note but neither the family or rheumoid will refer me . Do I have two choices comitt suicide or go to the Local hodpitdl that has no Specalists on staff . My wife don't drive and no one else will as well. I'm not very Mobile and can't drive because I can't even open a milk carton. . So I'm screwed . I fear hearing the words by someone else but know in the enc I hZve it. I don't want to deal with this and scared to comit suivide but have trying to gigure out how to . If I do that I'm s coward. My family doctor saw me and said wow you are completely stripped of everything. You can see the muscle wastage as the muscke just hangs the there on my arms. . When the neuro did the testing he only did the ncv and just the musvles . He didn't look at my body . He told my wife and I out of. 5 prople dh sad they day I was only the 2 without als . I questioned hid diagnose but my riffs did he's s expert , my wife dud help me a log now dhod md kea md get dressed ANC others things which I cdng . I have pse come in yo hrlp md during yrdvwerk . I'm not ready hog this. I'm not Loki b got anyone to diagnose me as I'm in withdrawnsl. I have a screw driver ready to go to stick in the sockit but wing have the guts to go it . I gong fcbe muchnhimf before I lours everything . I gong hxcfbodinkillerd yo overdose . I tried the bag on head but couldn't go it I'm find snd if anyone a method that is earlier then I rill listen Trevor