1. M

    Genetic Testing

    Hi there, My family has been burdened with C9 - we’ve lost 6 amazing people in 2 generations, so far, including my mom, Godfather, and Gramma. I’ve struggled with anxiety over this disease for over a decade now. The anxiety presents itself in the form of symptoms and I trick myself into...
  2. ShiftKicker

    Blood pressure testing at home?

    Does anyone have a home bp testing device they recommend? There seem to be lots out there, from super cheap to more expensive. So many, in fact, it's hard to decide and I'd just be closing my eyes and picking at random. tia
  3. V

    Husband is a possible carrier of c9 gene - anxiety over symptoms.

    Hi Everyone, My husband is 35 years old and has lost a cousin, an aunt, 2 uncles, (all to ALS) and currently watches his mom battle the final stages of ALS. His family carries the c9 gene. Upon visiting with his mom over Christmas (they live out of state) and spending a week surrounded by ALS...
  4. W

    Questions on testing

    Thank you for taking the time to read what I have going on. I am a 44 years old mom of two adult children and a 10 year old. Last month, my boss called an ambulance and had me taken to the hospital because I was having problems talking, couldn’t swallow and couldn’t lift my leg and I panicked...
  5. T

    Familial ALS continued

    Hello- For the backstory on this thread, please see the original Familial ALS posting. Perhaps a moderator can combine these two? We have received the gentetic testing results from my husbands brother, who had ALS-like neuromuscular degeneration combined with a family tree with many ALS and...
  6. C

    Update: Abnormal EMG with Twitching

    **Original Thread** https://www.alsforums.com/forum/do-i-have-als-als/43237-abnormal-emg-twitching-any-hope.html Hello All, particularly KarenNWendyn and lgelb and others... Figured I may as well update my above thread regarding mainly twitching, long story short he determined it is Benign...
  7. T

    Where to Go From Here

    Hello. My husband was diagnosed ALS May 24, 2018 at age 43. It all began in April 2017 when he began having difficulty clipping his nails, left hand onset first. From there it was over a year of testing, specialist, etc, which is the only normal thing I guess about this disease; difficult to...
  8. C

    EMG Results Came Back Abnormal - What Does This Mean?

    Two years I started experiencing random muscle twitches. I visited a Neurologist and after his examination he recommended an EMG to rule out anything serious (like ALS). They did a Nerve Conduction Study and EMG and everything was completely normal. Fast forward to this year and the twitching...
  9. M

    Likely Not ALS - that's good news!

    2 prior EMGs (Nov & Dec) with neurologist #1 noted chronic denervation, resulting in a "Possible ALS" diagnosis. First EMG (Aug) did not show any issues. Dr #1 was clear that lack of muscle weakness/atrophy after 9 mos of continuous fasciculations and cramping was encouraging. Next EMG in 3...
  10. S

    Genetic testing??

    My husband was dx. In dec. 18 we have very little past family history due to the fact that his maternal grandfather was adopted with no records and his paternal family have all died at young ages ( under 50) except for his father as of now who is 48. Reed is 28 and I am just curious if we...