1. jethro

    Bloodwork 6 years after diagnose

    i am strongly convinced that general bloodwork (but even if there's no biomarker like P(rotein)75ECD in urine) tells everything. what are you trying correct? my bloodwork - never better in my life, except low creatinine and elevated ck. but these are the consequences.
  2. R

    My wife (36y)

    Hi, 8 months ago we was on holiday, she run, rode a bike, walking 10km. In August she has started to have fasciculations in the thighs and with the index finger. In October she got damage to peripheral nerves diagnose without any motor neurons damages. In February this year we had new tests and...
  3. G

    Six Months - Many Symptoms - No Answers

    Hello, Like many others I have been visiting this message board after experiencing symptoms that led me to the internet - that led me here. I have read many posts and many stories on this site and have much respect for this wonderful forum. I will try not to make this a long and hard to read...
  4. C

    Question About Symptoms/Emg

    This is my 1st post on this site and I want to say I really admire how nice and helpful everyone who responds on this site is. The fact that you take the time out of your days to help people who have questions is really remarkable. I've been looking at posts on this site for a few months and...
  5. G

    Help - newly diagnosed

    I'm a bit lost - finally third neurologist confirmed I have ALS. I am using walker now - wondering if I should go ahead and purchase a used wheel chair on Craig's List. Also - in a great deal of pain at night - horrible cramps - given muscle relaxers - still little help. They tell me ALS is...
  6. M

    Twitching for about two weeks - concerned

    Hi all -- Sorry to add another "twitching" thread to a forum full of them, but I suppose everyone's experiences are different and hopefully everyone deserves a chance to be heard. Here's mine: For about two weeks, I've had a twitch in one spot in the middle of my forehead. Same exact spot...
  7. R

    Advice on symptoms - "weak" leg & twitching

    Hi All, Like many others on here, I have tried to avoid posting for as long as possible but would really appreciate your views on my symptoms based on your experiences. From what I have read, this site is a tremendous support and your are all very generous with your time. My summarized story...
  8. K

    PVA/newly diagnosed

    My husband is newly diagnosed and a veteran. We contacted PVA in Houston and PVA filed a claim for benefits. Does anyone know how long this should be taking? Once the claim was filed, the PVA person will not reply to our emails or phone messages. We are new to this and thought PVA would be...
  9. T

    Stressed and worried over symptoms

    Hello All, Over the past month I have had some crazy stuff happen to me that really has me stressed out and terrified. Let me start by saying that I have always been an anxious, worrying person but it hasn’t really had any impact on my physical health (at least until this last month). I am just...
  10. G

    another EMG, concerned

    Hi all you wonderful and supportive people in here! I have posted long time ago and have been in limbo for more than 2,5 years. Its really a hard time and I am progressing slowly and my symptoms and weaknesses are never ever «taking any break». I do have symptoms now in limbs and also bulbar...