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JBenz7524

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Sep 6, 2013
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Learn about ALS
Country
US
State
CA
City
Los Angeles
Hello, I've posted here before but my symptoms keep changing and my worry keeps growing so here I am again. I'm a 31 y/o male who leads a pretty active lifestyle, but also spends a lot of time typing on my tablet, computer, and phone.

Ill start at the beginning. About a month ago, I got a sudden twitch in my middle finger where it would move from side to side involuntarily sporadically for about 2 days. While the finger was twitching the back of my hand looked like worms crawling. That went away, but the twitching has now pretty much spread to every part of my body. Its like a quick thump, or a series of rapid twitches and it just happens once or twice and hour usually but sometimes it'll be the same spot for 20 mins or so. The other night, I could actually see my left calve pulsating with the twitches. I've done enough research to know that ALS would usually not spread that quick, so I attribute these twitches possibly to anxiety. However, that initial twitch and a few others cause me to worry about it.

If that was the only symptom I probably would have stopped worrying by now, but shortly after the twitch I started to get a pain in right wrist that kinda feels like I sprained it. I played tennis and golf days apart which ive done my whole life, but thats when it started. I can still do everything normally, but there is a pain I feel when trying to turn a key, shift gears, or hold a pen. It causes weakness, though I feel as if the weakness is from the pain not necessarily from clinical weakness. I was able to mount and hang a 47" TV on my wall by myself a week ago which hurt but I could still do it. I know ALS affects smaller muscles first so that probably means nothing.

Even more recently, I've started to feel a similar tight feeling ever so slightly in my left wrist. It is nowhere near as bad, but it is apparent. When I wake every morning, my hands are incredibly stiff and dry, and get that way sometimes throughout the day as well.

I've been trying to treat this as just a simple wrist issue and get ALS out of my mind. I've been wearing a wrist wrap for over a week now, but the feeling of a sprain just doesn't seem to go away.

If you put the twitching, the wrist issues that seem to be spreading from one hand to the other, and the accompanied feeling of weakness together it has got me down right panicked about ALS. I know that weakness wouldn't be so drastic that I couldn't turn a key overnight, so I fear that what I'm experiencing may be the early stages and that it is only a matter of time before the symptoms will progress to where I'll be experiencing real clinical weakness and it terrifies me.

I feel for every single person that has this horrendous disease, and really appreciate you taking the time to read this and offer your thoughts. I know you are not doctors, but just want to hear from the people with knowledge and experience of the disease if those symptoms sounds like ALS? If not, I could really use some reassurance and reasons why not right now. Thanks so much!
 
You need to go to the doctor...

You've been advised that before.
 
Ok, so that is definitely not reassuring. Are you saying that because it does sound like ALS?
 
No - I'm saying that because we are NOT doctors. You think there's something wrong - go to the doctor.

And please don't come back saying you have no money to pay for one. There are many free clinics in LA. I'm confident if you went to one and you actually have a fatal illness, they'd see to you pretty durn quick.
 
Thanks for the quick reply. I completely realize that you are not doctors, and that is why I'm not looking for a definitive diagnosis. Just like everyone else on this forum I'm looking for possibly reassurance based on the experience and knowledge about this disease from others.

Also, I know I've posted before but the symptoms have progressed and changed slightly. I don't need a doctor to have some reassurance, just people explaining to me how these symptoms don't seem to fit ALS...that is if they don't fit with ALS.

For example, it has spread from one hand to another in just a few weeks without the first hand experiencing any unexplained weakness yet. Is that possible w/ ALS for it to spread that quick or for it spread before causing significant weakness in the onset limb.

Next, does wrist pain seem like a possible symptom, as how it's presented in me?

Does a twitching finger seem to fall in line with what is seen as first sign of ALS twitching?
 
Your symptoms don't sound like ALS. You should stop worrying. I twitch all over the place. I have twitched in just one spot too. I have weakness in my hands and arms. I have brisk reflexes and a positive Hoffman's reflex... yet I don't have ALS.

I would put a brace on that wrist and let it heal. My joints hurt all the time too. I just try to nurse them back to health when they are swollen, weak, or in pain. You should try to do the same and stop worrying that you have a fatal disease. Good night!
 
I started with brisk reflexes in 2006. In 2011 my fasciculations started,
Confirmed by an emg at a Als clinic.

2012 emg the same, then a positive Hoffman, hyper-reflexia, and
A jaw jerk. Three Als specialist later, I'm told NO als or MND!

Btw: 2013 emg, by the third specialist,of my left side showed no fasciculations now.

I was also told I have a normal EMG & clinical by my third Als specialist with all these signs:
Hyper-reflexia, Hoffman, & jaw jerk. They call my weakness fatigue because it's not
Clinical. Sounds strange to me but they are the experts.

I worry too but I talk to a friend and she reassures me I'm fine!

I agree with goolia75. I know it's very hard but try not to worry. If your symptoms
Get worse go to the doctors. My best to you
 
Thanks for the replies so far. They really help my concerns. If it doesn't fit ALS symptoms, It would be incredibly reassuring to hear what doesn't fit from people with knowledge of the disease...really appreciate it, my heart goes out to everyone.
 
Have you been to see a dr yet?
 
No, I've been trying to treat the wrist pain with a brace, and feel its gotten somewhat better but not sure. Again, I'm not here looking for a definitive diagnosis, but rather possible reassurance. I've seen posts where people have said that doesnt sound like ALS because of this, or it points away because of that. I'll go to a doctor if things progress enough, but for now I'm just looking for something to hopefully ease my concerns while I evaluate what's goin on.

It could just be a wrist issue, and the anxiety could cause widespread twitches, I get that...but reassurance from others if it doesn't sound like ALS to them would certainly help. Thanks again.
 
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