worry

  1. D

    Wholeheartedly Believe It's Bulbar Onset

    Hi All, I sincerely apologise for coming on here again. (Last here in 2012). I just wanted to put my thoughts down into words due to the worry it is causing. Firstly I’m a 34 year old male who is very overweight and leads a very sedentary lifestyle I have had a large variety of symptoms which...
  2. C

    update on me

    Hi everyone, I haven't posted in a while and thought I would come on and give you a life update. Things had been going really well for me and my family. I went back to school for my Masters in Education and in general starting taking care of myself. Well long story short, I went in for my...
  3. I

    Facial muscles

    I was diagnosed with progressive Bulbar Palsy I. January 2018. Although I could no longer swallow or speak by April of 2018, a PEG. helped and things were ok until Christmas of 2018. My limbs are weakening but I’m making the best of that. My biggest worry is my eyes. Even after sleeping well...
  4. C

    Concerned about leg weakness and other symptoms.

    I'm hesitant to post here because of the seriousness of the disease in which I'm extremely anxious over, but I need guidance: I've been battling a bulging disc in my lower back since 2007 that gets irritated a few times a year. Flash back to middle of February and I aggravated it again, but...
  5. K

    Is this ALS?15 years old

    Hello everyone, I am sorry to bother you. I am from China and my English is not good. I am 15 years old and no one in my family has a nervous system disease. I learned about amyotrophic lateral sclerosis a month ago. Soon I felt that my right arm was weak and my left arm was weak. I went to...
  6. J

    My symptoms, my fears

    Hello, first of all thank you for letting me join this forum. I’ve been dealing with some symptoms in the last month and I wanted to ask your opinnion about it. I’m 40. For some time I had some numbness in my hands, legs and upper lip so I had an appointment with neuro to see if something...
  7. M

    I have real weakness - please help

    I haven’t been here in a while. Busy having kids and all that. I had a baby six months ago and have not really been paying attention to myself. I have noticed thought that I am unable to lift things with my right arm when it is extended I’m a certain way. I became curious so I tried lifting...
  8. S

    New caregiver

    So sad. Husband diagnosed end of December. He's very used to being in charge and making all the decisions. I am a RN/NP. So I know a bit about caregiving. He fights me on all the ways to do things. Slowly he is beginning to listen to me but it's frustrating. I only seem to cry when...
  9. J

    Can't control my fear.

    Hi everyone. I know this isn't an anxiety or fear forum. But I have some concerns that I am really worried about and confused about due to Google. First off, I'm so sorry for anyone going through this disease- I don't want anyone to be wasting their time reading this because I'm not worth it...
  10. T

    Do you guys believe...

    ...that one day doctors will ever say to a patient: "don't worry, it's only ALS". Or is this disease continue to plague and despair the human kind for hundreds of years to come?
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