Hope you are coping well. I am a newly registered member here and noted your comments about back pain.
Can you tell me if you find it difficult to sit upright and are slightly slumped over at times? As this does happen to me from time to time. I was diagnosed in April this year with ALS, and am paralyzed from the hips down. Fortunately my upper limbs still appear to be normal. But this back weakness is something I wonder about.
My daughter and I are going to go see my dad on June 9th for about a week in Dallas. I'm excited since I haven't seen him since right after Christmas. The kids are done with school this week. Bring on summer vacation. We all miss you. Hugs, Kim
A few days ago I posted a message (in the equipment for sale section) asking members of the forum for spare Riluzole. My message seems to have been deleted. Do you know if it was completely deleted or moved to a more appropriate section?
Hello again Elaine. It's obvious that we all have missed your input and wise words. So so glad you are feeling better. I did become a grandma last week. We needed that kind of joy around here. I posted pic on the I love...thread.