Hi I was hoping others who are on or have tried mexiletine could chime in with their experience. Apologies in advance for the length of this post.
Background: I'm in the AMX0035 (amylyx) clinical trial in the open label phase meaning we know for sure I am receiving the real drug. I was told...
Like many others I have been visiting this message board after experiencing symptoms that led me to the internet - that led me here.
I have read many posts and many stories on this site and have much respect for this wonderful forum.
I will try not to make this a long and hard to read...
Prayers and blessings to everyone affiliated with the website and forum and their families.
I am a 47 year male that was in great shape. I am 6ft 2in with weight fluctuated between 198 to 200 lbs. I worked out in some capacity everyday. My only previous health issues were acid...
Hi! Male 44 years old here. ’m sorry to be posting but I finally decided to seek your advice. My wife and I are nervous and some of your thoughts might really help us. I’m having some symptoms that are worrying me. Here they are in brief:
Dec 22: Odd headache in left temple— three pulses, long...
Hi im a 29 year old male my story starts with one day in may 2018 i notice twitching in my calves then few weeks notice them in my arms , scalp, tounge, and eyelid not constant maybe a few pops
Over time my right leg felt stiff , felt like it would buckle and heavy feeling also if i would rub...
So I am back after a brief hospital stay which caused whatever I have to flair up again.
It all began in 2011
*******-------Feb 4-5th 2019-----------*********
So went back to same neuro with exasperated symptoms after a brief stay in the hospital for severe constipation.
After the hospital...
First of all just want to say thank you for what you guys do and provide everyone on this site. I'm so sorry for anyone who is impacted by this disease in any way.
I've read the sticky portion which was reassuring, but I'm still freaking out. Let me explain.. Around thanksgiving I...
(Sorry i first posted it by error in the general feed)
Hello everyone, first of all thank you for everyone contributing to this forum because I find it quite helpful to read about individual experiences.
I am writing here as I have been experiencing different health problems for a while...
I just have a couple questions. I realize this is not an anxiety board nor are you all doctors.
I have been doing a lot of research online after I had an emg of my left arm. I looked up some things that were on my results and something that kept coming up was ALS. I knew what ALS was before...
Hello i am a 26 year old male , one morning i woke up and both arms and legs felt weak,
i will back the story up, before that day i worked out 4 times a week, and i work a office job but had a seasonal job 2 weeks* before i the weakness started that i had to stand and run and jump a lot as a...