cpcopin
New member
- Joined
- Jan 20, 2016
- Messages
- 5
- Reason
- Loved one DX
- Diagnosis
- 08/2015
- Country
- US
- State
- California
- City
- Anytown
I am new to this forum and I am looking for answers. My brother was diagnosed in Aug. 2015. I have taken the lead in coordinating his care. I suspect he is VERY far along in this disease despite the fact that 6 months ago he thought he'd just pulled a neck muscle while golfing. His doctor referred to him as having "cervical" onset which she must have meant bulbar. He is almost to the point he can't speak, he chokes on food and his lung "number" is mid 50's. He's been told he needs a bipap, which for now he's refused, and to give serious thought to a feeding tube. He loses functionality DAILY. His great friends are telling me it's almost time for hospice. I thought the doctor made that call. Help! Is he near the end or is there alot more damage to be done? Do I call hospice or the doctor?