brother

  1. M

    What happened before the ALS diagnosis

    Hi, for start I'm sorry for my bad english. I writing for my sick brother and want to know what can cause ALS. I would like to know if there is any research of how people lived and what kind of medication they took before getting the symtoms and later ALS diagnosis. Short history of my little...
  2. T

    Familial ALS continued

    Hello- For the backstory on this thread, please see the original Familial ALS posting. Perhaps a moderator can combine these two? We have received the gentetic testing results from my husbands brother, who had ALS-like neuromuscular degeneration combined with a family tree with many ALS and...
  3. J

    Fasciculations ans hyperreflexia.

    Hello everyone. First if aller sorry for my english, it's not my first langage... I'm a 37 y.o. girl. I have a MS suspicion because i have hearing loss at one frequency in my right ear (-50db in high frequency). My mother, brother ans uncle have MS. But i have a LOT of fasciculations...
  4. B

    Merry Christmas

    To all PALS & CALS, Leaving for my daughters shortly and won’t be online much for a couple days. Wish all of you a very Merry Christmas and a Happy New Year. God Bless you all. PALS - Enjoy what you can and don’t sweat what you can’t control. I’m going to enjoy watching my grandkids open...
  5. E

    Resources for relatives living abroad

    Hello, I was not sure whether to make a new post or to post on a previous one on teens, but I think that living away changes the experience quite a lot so I figured it would be helpful to open a new thread. As some of you know, my father was diagnosed with PLS. I am from Spain, where he still...
  6. Buckhorn

    Just a bit over 4 month's in S/P

    Hi all. Just checking in. Nov. 4th was the 4 month anniversary of Dave's passing. I miss him every single day, but, I will admit ....... less so as time goes by. I think of him, or of phrases he would say, or things I knew he would want to talk about, multiple times per day. I have conversations...
  7. S

    Familal Als in my family. What are my chances

    long story short. my grandfathers side of the family has familial als. My grandfathers brother got the disease and died within two years. there mother had als and there grandmother also had als. although my grandfather did not get als. neither did his other 3 sisters or other brother get the...
  8. L

    Should I worry?

    Hi, I have read the thread with the symptoms and I wouldn’t have posted here, if it weren’t for my knees that are kinda bothering me – some vibrations, not exactly twitching which probably wouldn’t scare me because I would say the cold is to blame ( I sleep in just a shirt and it is kinda cold...
  9. Kristina1

    severe back pain

    Hi everyone. I recently traveled to visit my brother out of state. Since coming back, I have had severe mid-low back pain. I believe it was caused by the way I was sitting while traveling and my weakness in the muscles that support your posture when you sit. On the day I came home I was in a...
  10. J

    Mother Diagnosed

    Hi everyone, My mother has been diagnosed with ALS 2 weeks ago. she is having a bulbar onset right now having a hard time swallowing, talking and eating. Her Neurologist told me her breathing is good and has a relatively slow progression. She is on Riluzole right now, seems like the progression...
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