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  1. M

    Rushed ALS Diagnosis ??

    First off, my heart goes out to all of you. You are so incredibly brave and generous with sharing your time, experience and support. My husband walked into a neurologist's office with symmetrical muscle weakness and walked out with a diagnosis of ALS. Some background - My husband is 51 and...
  2. Nikki J

    Importance of reading to your children

    The Million Word Gap Parents who take time to read aloud to their children are doing them a huge favor. Not only is it a memorable bonding activity, but it's also a way to jump-start a child's education and put them on the fast track to literacy. Many parents and caretakers know this...
  3. C

    Muscle fatigue/weakness, fasciculations

    I want to share my story. I have seen many doctors in many specialties (including many neurologists), and nobody can help me. I'd like to ask (1) if this sounds like ALS, (2) if this sounds like another motor neuron disease of any kind, or (3) what else it could be and where else I might look...
  4. swalker

    Lithium Battery for Magic Mobility X4

    I am not sure where to put this, so will put it here. Mods, please feel free to move this to a more appropriate forum. As some of you probably read in the PALS checkin post, last Sunday we installed a home-built lithium battery pack in my Magic Mobility X4. I will provide some details in this...
  5. T

    Rectal burning sensation (sorry to be so blunt)

    Does anyone have trouble with rectal burning made worse when sitting in the power chair? Multiple cushion combinations have been tried and every over the counter remedy has been tried. Prescription level lidocaine and pain relievers including Norco. I'm currently on gabapentin and Lyrica in...
  6. swalker

    Skiing at Vail

    Last Wednesday I went out for my first ski day of the season. For those new to my ski adventures, I ski with Vail's adaptive ski program, about which I just cannot say enough good things. I use a biski, which is a contraption with two articulating skis, a suspension system, and a seat for me...
  7. H

    Very scared - seems more like ALS each day

    Hi All, First I wanted to say thank you to all of the folks who take the time to read these posts and share their opinions. I've been reading on these forums for a little while now and figured it was finally time to share my concerns... Before I go into detail about my story, I'll quickly...
  8. C

    Lost Dazed and Confused

    Hubby was diagnosed in Apr 2018. Had an accident in December and is no longer walking. Got the flu right after Christmas and was sicker than anything for 2 weeks. Took him to Dr. on Monday no fever, no HBP, said he was feeling good. Got him home from Dr. (we live almost 150 miles from VA)...
  9. B

    Not sure if I should be worried or not...

    Hello all. I’ll start off by saying Happy New Year and I hope everyone has a joyful evening. I’m a new member to this forum but I’ve been reading post after post as a guest. I’m a 21 year old female who has been having worrisome (to me) symptoms. I’ll admit to everyone I am somewhat of a...
  10. M

    Please read this - serious now and I think I know what's caused it

    Hi. Please bear with me here. I am 39, male. Weight trained very seriously since 16 and in the summer weighed about 250lb. I have always been in perfect health until this year. Back in August I started getting muscle twitches randomly across my body and pretty bad fatigue, along with tight...
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