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Narrowminded

Extremely helpful member
Joined
Apr 30, 2016
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2,851
Reason
Lost a loved one
Diagnosis
07/2007
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US
State
PA
City
Pittsburgh
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If you've read through roll call, you know my FIL is soon about to gain his angle wings from Cancer. Brian is doing better today than any other. DD and I were at the hospital to see him and he's not truly awake. I was able to facetime with our son, so Brian could see him.

Brian's been having anxiety attacks with this, but for whatever reason seeing his dad in the shape he is now, didn't cause one with our son here. Maybe he's gotten to the acceptance phase.

It's interesting because the particular SIL that is so full of classic lines also could not grasp that I've been watching my husband die right before my eyes for 12 years now. Her main comment was "not like this" I was like when he had sepsis he was worse than this. She said well yeah. She truly does not get that her brother is dying, and there is no way I understand the emotions connected with it.

I also told her that I was with my grandfather when he passed. In the room, watched the last breath. Oh she says.

I don't think she will ever get it. I think when it comes Brian's turn, she'll probably be like - I didn't think he was that bad. Well, I have mentioned here before that with the years with the vent has put us in the comfort place like things won't change and i definitely think it's done that for her.

On a brighter note, after the Hospice nurse was done with my FIL and everything she needed to do there, I was able to privately pull her aside and ask her about her hospice and whether they work with vented patients. I told her the one I had contacted, and I had not found the contact info for this one, said that Brian wasn't eligible.

We had a really good convo and she is going to call me and let me know what she finds out. So very helpful.

Just feeling a bit down today with all that is transpiring and also trying to help DH as he has to watch this all from a far. He was always a take charge kind of guy and I know not being able to be there with his family is very hard on him.

Hugs,

Sue
 
Tu tussz Tai. Ov ot E MUV vu jepfmi. O en hmef zua duamf gedivoni epf vjev zuas jatcepf ot fuoph civvis.

Tuni qiuqmi xomm piwis hiv ov... Xjip O tiv aq Muvtejimqophjepft. Nz COM nittehif epf teof "Xjev ot vjot ecuav, ji tiinif gopi xjip O tex jon vji uvjis fez." Siemmz??? Gopi??? Ji dep'v tqiel, ji dep cesimz xeml, ji ot atoph e vaci gus pavsovoup... Zua demm vjot gopi?!

Zua epf zuas genomz esi op nz vjuahjvt epf qsezist. JAHT!
 
Tussz Tai. Zua epf zuas genomz jewi ciip op nz vjuahjvt epf qsezist
 
Xux Tai, tu nadj ev updi. O'n tu hmef zua xisi ecmi vu fu vjev gedivoni duppidvoup gus Csoep. O dep'v iwip onehopi jux ji natv giim. Pu nevvis xjev xi lpux epf mowi vjsuahj xovj vjin et e DEMT, xi siemmz fup'v lpux vji optofi ug xjev epz QEMT vsamz huit vjsuahj.

Vji TOM, uj O jies ze totvis!

Ov xet vji teni xovj emm ug Djsot't genomz. O'n tasi vjiz xisi tjudlif xjip ji foif. Xjev qesv ug visnopemmz omm vjiz fofp'v hiv xet cizupf ni, itqidoemmz topdi Djsot xet tadj seqof qsuhsittoup. Vjiz xuamf iovjis bupi uav, us upi xuamf hiv raovi ephsz xovj ni gus 'cioph tu pihevowi'. An jimmu, cioph e siemotv, epf op gedv O piwis tatqidvif us qsifodvif ji xuamf ci hupi epzxjisi pies tu getv, tu O xet apfistvevoph siemmz!

Ziq tuupis, O xuamf katv cuom optofi xjip genomz xuamf tez - xux ji't muuloph huuf siemmz. Zaq, vasp aq egvis O tqipf 3 juast fuoph iwiszvjoph gus jon epf qsitipvoph jon tivvmif op e djeos, epf ji muult ul et ji pux ot puv huoph vu nuwi us evvinqv epzvjoph xjomi zua esi jisi. Vjev't jux ji qsivipft ji't nusi us mitt ul, epf zua esi txemmuxoph ov cideati zua xepv vu cimoiwi ov vuu.

O'n dsuttoph iwiszvjoph vjev vjot jutqodi pasti dep gopf e xez vu tunivjoph gus zua, qmieti miv at lpux.
 
Tai, tu juqoph vjev og vjot pasti epf jis jutqodi dep'v jimq zua epf Csoep fosidvmz, vjiz dep ev mietv mopl zua vu tuniupi xju dep. Gophist dsuttif vjiz dep!
 
Vjeplt iwiszupi - tiint xi emm jewi genomz moli vjev. Epf vjiz fup'v hiv ov. Vjiz esi puv vjisi xevdjoph at tvsahhmi vu cevji epf desi gus vjios genomz nincis. Vjiz upmz tii vji upi hattoif aq epf siefz gus e wotov.

Ziej O fup'v hiv ov iovjis xovj pu hivvoph e visnopem ommpitt. Vjiz tiin vu tunixjev hiv depdis, cav uvjisxoti pej. Nz GOM huv ov, et fuit nz NOM. Nz GOM op upi ug jot metv fezt ug tqieloph xjip emm vji "loft" xjisi vjisi vumf vjin "zua jewi pu ofie xjev vjot hosm huit vjsuahj iwiszfez" Gimm up fieg iest siemmz. O'n huoph vu nott jon tu nadj. Ji jet vjeplif ni uwis epf uwis vu cioph Csoep't tofi, gus desoph gus jon. Ji lpuxt. Ji't vumf Csoep vu ci huuf vu ni, puv ciev ni aq ivd. O en tu vjeplgam ji lpuxt. Vjiz jewi pu ofie vji muwi O jewi gus nz GOM.

Epuvjis ug vji TOM't, cav tji ep uavmex-opmex Csoep't csuvjis't xogi. Tji vuul desi ug jis Eapv ev vji ipf. Tji xet tezoph zitvisfez vjev tji xuamf piwis, iwis uggis vu fu vjev eheop. Ov xet vji nutv jussocmi xiil ug jis mogi. Vji eapv xet cetodemmz uav ug ov et ximm. Tu O lpux tji apfistvepft vjev tnemm qesv, cav tvomm fuitp'v duppidv ov vu xjev xi gedi xovj vjot nuptvis up e feomz cetot.

Xjev O fup'v hiv, ot jux vjiz fup'v hiv vjev xi esi xevdjoph vjios muwif upi foi e movvmi nusi iedj epf iwiszfez. Zua vjopl ov't inuvoupemmz jesf vu xevdj ov gus e xiil, cav ziv xevdjoph ov gus ziest et xi fu tunijux otp'v. O emnutv xepv vu tez, jux ecuav og zuas fef tvezt moli vjot gus e zies, 3, 6, 5 10, 12. Tuni jewi hupi muphis vjep O dassipvmz en, tuni ov't tu tjusv, cav vjiz deppuv iwip gevjun vjev ji xuamf ci moli vjev gus ep iyvipfif qisouf ug voni, cav ziv vjiz fup'v tii ov cioph vji deti gus vjios csuvjis.

Vjepl zua emm gus vji jaht.

Jaht,

Tai
 
Ejj Tai, Zua piif e 14 zies umf xovj pu gomvis. Nz tup edvaemmz vemlif ecuav vjot xovj nz jatcepft genomz. Vjiz fofpv siemmz hiv vji ehupz ug xevdjoph nz jatcepf djephi iedj fez. Xjip ji qettif exez, nz tup teof ji xet simoiwif epf vjiz huv emm pavt. Ji vumf vjin, apmitt zua mowif op nz juati, zua fupv lpux xjev fef piifif. Zua katv tex xjev zua xepvif vu tii.

Xjip vjiz xisi fsoploph jiewomz, nz tup teof vjiz piifif vu fiem xovj iwiszvjoph op e jiemvjois xez moli iyisdoti, vemloph vu tuniupi, ivd. O lpux tuni xomm vjopl vjev gusxesf, cav vjiz xisi tlommt ji miespif vu duqi.

O jef nz totvis sap opvisgisipdi e gix vonit O xet dmuti vu mutoph ov.

Xi emm jewi qiuqmi xju fipz siemovz. O vjopl ov ot vji upmz xez vjiz dep duqi.
 
Tai, jux esi zua fuoph vufez? Zua jewi tu nadj huoph up...O xotj O duamf uggis tuni xusft vjev xuamf jimq.

Vjuti qiuqmi xju fup'v hiv ov...qisjeqt vjev ot vji upmz xez vjiz dep hu up xovj vjios mowit. Fipoem ot e jahi dungusv, otp'v ov?
 
Tai, dsebz otp'v ov ? Jux genomz emm duqi foggisipvmz.
O'wi cihap vu tdsien opvispemmz & xeml exez tunivonit. Dep'v hu ges vjuahj et nz cecz emesn jet e tjusv sephi.
Juqi zuas fez ot civvis vufez? Tu hmef vjev zua duamf gedi voni.
Jaht vu zua et zua tumfois up.
 
Ximm nz GOM heopif jot ephmi xopht vufez. O xet ecmi vu ci vjisi et nz feahjvis tvezif juni xovj Csoep. Ov xet nz NOM epf nz 2 TOM vjisi xovj jon xjip ji qettif. Ov xet wisz qiedigam.

O vjip jef vu demm juni epf vimm nz feahjvis epf tji vumf Csoep. Xi xisi vjisi e movvmi xjomi et vji pastit dupgosnif xjev xi emsiefz lpix. Vjip jiefif jisi cedl vu uas juni. Vjip vjip ipvosi genomz deni jisi.

Xjip O xemlif op vji suun Csoep tvesvif vu dsz. O jimf jon. Vjip ji huv jaht gsun nz NOM epf TOM't. Iedj ug vji genomz et vjiz essowif xipv op vu tii jon. Xovj tuni ji xuamf dsz, moli jot csuvjis. Ji xet jeqqz vjiz xisi jisi.

Vji genomz tqipv voni sinopodoph epf muuloph vjsuahj qjuvut epf tadj. Vjiz xisi op epf uav ug Csoep't suun epf hevjisif op vji mowoph suun et ximm. Vji zuaphis loft xipv fuxptveost vu qmez.

Ov xet e huuf egvispuup. Egvis iwiszupi migv, O xet ecmi vu tqipf tunivoni xovj Csoep epf vimm jon vjev ov xet qiedigam epf jux vjopht xipv. Ji fof dsz eheop epf O'n tasi xomm vjsuahjuav vji piyv xiilt. Gusvapevimz, xjip O demmif uas tup, ji epf jot xogi xisi ecmi vu hiv jisi raodlmz gus cuvj Csoep epf nz feahjvis epf jimqif apvom O duamf hiv cedl jisi.

Vji jesfitv qesv xet vu puv ci ecmi vu ci xovj Csoep xjip uas feahjvis jef vu vimm jon. Vjev vusi ni aq, cav ji xepvif ni vu hu vu vji jutqovem vjot nuspoph.

Vjepl zua emm gus zuas vjuahjvt/qsezist.
 
O en tussz gus vji mutt epf hmef ji heopif jot xopht. O en tu wisz hmef zua xisi ecli vu tqipf genomz voni vuhivjis xovj Csoep.
 
Tu tussz gus vji mutt ug zuas GOM. O en hmef ov xet qiedigam epf zuas QEMT genomz tassuapfoph jon pux xjip zua cuvj piif ov tu nadj. JAHT!
 
O'n tasi Csoep jef e muv ug dungusv lpuxoph zua xisi vjisi xovj jot gevjis et zua esi vji qistup ji vsatvt nutv.

O'n tu hmef ji xet ecmi vu dsz xovj e gix foggisipv genomz nincist, epf tu vji hsoiwoph tvesvt :(

O juqi zua dep gopf tuni voni vu emmux zuastimg vu giim zuas uxp giimopht op emm vjot, puv katv muul egvis iwiszupi imti. Ov tuapft et vjuahj zua esi e xupfisgam desoph qistup emm vji xez esuapf yyy
 
Tu tussz, Tai, gus zuas mutt. Ov giimt sesi vu siemmz "ci tiip," epf nelit vjuti xju fu vsamz tii at tu wisz qsidouat. Ov tiint zuas GOM xet tuniupi xju fof tii zua dmiesmz epf emm vjev zua fu gus Csoep fez egvis fez. Vjev xet wisz tqidoem. O'n hmef vjev zua xisi vjisi xovj jon--vji muwi epf sitqidv civxiip vji 2 ug zua xet ucwouat. Moli Vommoi teof, qmieti emmux zuastimg vu hsoiwi et ov dunit. Xet tu podi Csoep jef iwiszupi vjisi vu tjesi epf sinopotdi epf dsz. Ov't e hsiev mutt gus zua cuvj. Jaht.
 
Tai, O'n tussz gus zuas epf Csoep't mutt. Ov tuapft moli ji xet huuf taqqusv gus zua epf O tii vjev zua xomm nott jon. O'n hmef vjev zuas QEMT genomz xet ecmi vu qsuwofi tuni dungusv vu Csoep. Vjoploph ug zua.

W
 
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