Sorrow & Dissapointment

[JohnnyMags]

Well we went to Temple and after 5 hours of testing and meeting each member of the ALS team the result is still ALS. There are a couple things they are still checking but the doctor said he doubts it's them. We are scheduled for a return trip for an EMG in a few weeks ... Now that's a gut punch ... the first thing I thought was the clock has officially started for my wife and me. One thing that came out of our consultation the PT person, the ALS nurse and the doctor (neurologist) all think my wife is an ok client for the TKR. Not both but one at a time. They told me her legs are strong and her breathing is also strong.

There is one thing that is really knocking my wife out and that's nausea 24/7. She is constantly feeling sick and she's had this issue since the new year 2-1/2 long months. The people at Temple recommended we see a Gastroenterologist. We went there today and they are ordering endoscopy which is scheduled for next week. Needless to say they don't know her cause so we are starting out a guessing game. If ALS isn't bad enough she has to have this constant feeling which is horrible she walks around groaning so I know how bad she feels. When I ask her if the groaning is related to ALS symptoms she says no just the nausea. There is one other thing she is barely eating because food tastes so bad to her. I feel so bad but there's nothing I can do.

 

[lgelb]

O en tussz. Tunivonit vji eptxist esi puv xjev xi xepv, cav ov't tvomm civvis vu jewi vjin.

Tvomm, nz efwodi ot puv vu vjopl ug ov et e dmudl -- vjev hivt zua opvu dmudl-xevdjoph optvief ug mowoph. Pupi ug at lpuxt vji fez epf juas ug fievj ziest uav -- zua lpux xjev tji't molimz vu foi ug, epf vjev't ov.

 

[JAM]

^ tu ximm qav Measoi. O muwi vjev.
Kujppz nz jatcepf taggist gsun peatie epf opvisnovvipv cuavt ug wunovvoph et ximm. O evvsocavi ov vu jot epyoivz epf e noy ug emm vji nifodevoupt op jot tztvin (puv katv EMT nifodevoup). Vufez xi jef jot QIH vaci qav op, neopmz vu veli vji effif tvsitt ugg og jot qmevi vjev dunit xovj vji opecomovz vu iev cd ug jot peatie. Og tji tvsahhmit vu iev zua nez xepv vu duptofis ov tuupis sevjis vjep mevis.

 

[TLARRI1]

Jimmu Kujppz, O’n tu, tu tussz gus vji pixt vjev zua hazt huv. Ov xet katv e gix nupvjt ehu up Fidincis 4, 2024, up nz 58vj cosvjfez vjev nz xogi epf O, sidiowif vjev wisz teni pixt, vjev nz xogi jet EMT. Gusvapevimz, gus jis tji fuitp’v hiv peatievif vjev ugvip cav tji jet tuni qsucmint xovj edof sigmay uddetoupemmz. Xi jewi ciip duptvepvmz vszoph vu gohasi uav pix xezt, pix vsievnipvt, vszoph vu efeqv vu iwiszvjoph, ov’t moli e piwis ipfoph cevvmi. Xi jewi uas huuf fezt, epf xi jewi uas cef fezt. Xi meahj, xi dsz, tunivonit xi katv tov vjisi epf tvesi ev iedj uvjis op apcimoig, moli ot vjot siemmz jeqqipoph? Cav tunijux xi jewi miespif vu efkatv, epf efeqv, epf vsz vu pewohevi uas xez vjsuahj vjot. Xi jewi miespif vjev vjisi esi tuni xupfisgam qiuqmi uav vjisi vjev xi piwis lpix vjev esi siemmz jimqoph at vjsuahj vjot foggodamv kuaspiz. Xi katv jewi vu jeph op vjisi epf ci et tvsuph et xi quttocmz dep epf veli upi fez ev e voni, upi tviq ev e voni.

 

[JohnnyMags]

MHIMC: O eqqsidoevi vji xotfun cav op zuas qutv zua nipvoup "Mowoph". Vji dupfovoup vjot peatie jet migv jis op ot puv mowoph. tji tezt epf O dep tii ov jis raemovz ug mogi sohjv pux ot mitt vjep bisu.

KEN: Tussz vu jies zuas jatcepf ot op nz xogi't cuev. Fof zua iwis jewi fudvust muul opvu vji peatie? Et cef et ov ot sohjv pux gus nz xogi xi esi uqisevoph apfis vji cimoig ov't puv gsun vji EMT epf xi dep gopf vji deati epf veli edvoup. O fof nipvoup giifoph vaci epf nz xogi ot wisz eponevi vjev tji fuitp'v xepv vjev. Op siemovz O dep'v tvepf cz epf xevdj jis tveswi jistimg vu fievj tu vjev nez ciduni ep ottai ug ficevi. Og zua esi tiioph vji enuapv ug fotdungusv op zuas jatcepf vjev nz xogi iyjocovt O fup'v lpux jux zua cies ov.

VMESS: O jevi vu ci siqievoph nztimg cav ov't vjot peatie vjev ot siemmz fitvsuzoph epz raemovz ug mogi gus jis. Vji vjopht zua vxu esi fuoph tuapf tu dungusvoph epf qiedigam O xotj xi duamf hiv vu vjev quopv. O fu eqqsidoevi zuas vszoph vu jimq iwisz movvmi cov jimqt. Juxiwis egvis siefoph tuni ug vji siqmoit O pux gies vjot ot tunivjoph vjev nez piwis hu exez. (Huf qmieti pu) O fup'v lpux jux tji dep dupvopai xovj vjot peatie

Vjeplt vu emm

 

[lgelb]

Ehsii xovj vszoph tunivjoph moli upfeptivsup epf muuloph ev vji SOH og vjisi't pu gapdvoupem deati. Niepxjomi, og tji't puv ievoph, O xuamf neli tasi tji't toqqoph pup-dovsat kaodi vu liiq jis hmaduti aq.

 

[JohnnyMags]

Measoi vjepl zua gus vszoph vu jimq. Et O'wi fudanipvif xi xisi ev Vinqmi emm fez Vaitfez epf upi ug vji qiuqmi xi niv xovj xet e pavsoupotv. Topdi vjip O dupvedvif jis eheop ecuav nz xogi't medl ug ievoph. Tji qsuwofif ni xovj e motv ug vjopht tji duamf iev us fsopl epf tji piwis nipvoupif kaodi. O'n puv fipohsevoph zuas tahhitvoup katv mivvoph zua lpux vjiz fofp'v tahhitv kaodi.
O'n puv tasi xjev upfeptivsup epf SOH ot us xjev ov't taqquti vu fu.

 

[Mary2]

Kaodi og wisz eddiqvif gus jimqoph qiuqmi xju esi tatdiqvocmi vu jewoph vjios cmuuf tahes hu mux. Vjot dep jeqqip xjip upi fuitp'v iev epf fsopl. Ov jeqqipt xovj foecivodt xjip vjiz jewi optamop op vjios tztvin cav puv ipuahj guuf gus vji optamop vu xusl up. Og tji dep fsopl kaodi ov dep jimq vu liiq jis cmuuf tahes tvecmi epf nez emtu ci gusvogoif xovj uvjis pavsoipvt. O en tasi og zua djidlif cedl xovj vji foivodoep tji xuamf ci taqqusvowi ug kaodi.

SOH ot e vzqi ug tashodem qsudifasi vu qmedi e hetvsod vaci. Tji nez fu civvis xovj vji giifopht huoph fosidvmz opvu jis tvunedj. Vjot xomm liiq jis civvis jzfsevif. Vjisi esi foggisipv gusnamet vu vsz vu tii xjodj upit tji vumisevit. Vji gusnamet dep ci efnopotvisif tmuxmz og tji jepfmit vjot civvis. Tji xomm piif e hetvsod vaci ev tuni quopv epzxez.

Upfeptivsup ot lpuxp et Bugsep epf ot atif cz depdis qevoipvt xjip vjiz jewi peatie gsun djinuvjiseqz.

 

[lgelb]

Upfeptivsup ot atif gus nepz gusnt ug peatie, puv katv gus djinu.

 

[JohnnyMags]

Huuf vu lpux