1. KimT

    Eye Correction

    How many PALS here have had corrective surgery for eyes since being diagnosed? I had to cancel my consultation last week because my dental appointment ran on too long. I had lasik in 2001 but it regressed and now I wear progressive lenses again. I'm hoping to get either lasik enhancement or...
  2. B

    over 6 months of symptoms no answer

    First i would like to thank everyone in this forum for providing there experiance and knowledge, and i hope for a cure soon. would also like to state that i have never had HA and my symptoms did not start with twitching. I won't make this a novel so here goes. Sept. Mild fatigue and felt i...
  3. ShiftKicker

    Blood pressure testing at home?

    Does anyone have a home bp testing device they recommend? There seem to be lots out there, from super cheap to more expensive. So many, in fact, it's hard to decide and I'd just be closing my eyes and picking at random. tia
  4. I

    Facial muscles

    I was diagnosed with progressive Bulbar Palsy I. January 2018. Although I could no longer swallow or speak by April of 2018, a PEG. helped and things were ok until Christmas of 2018. My limbs are weakening but I’m making the best of that. My biggest worry is my eyes. Even after sleeping well...
  5. D

    Tobii user needs glasses

    Tobii rep said bifocals with line don't work well with their eyegaze technology. My 50 year old eyes need help. Have any of you used progressive lens glasses with a Tobii? How was your experience? Do any of you have advice?
  6. L

    Eyes in ALS and double vision

    Hi guys, it's been 2.5 years since my mom got a diagnosis of probable ALS but cannot exclude MG, it's all very complicated. There was a partial response to medication for MG but there is still progress. Legs are strong and not affected. Recently they did a SFEMG of the eyes, which showed...
  7. chally

    Dry eye

    Does anyone have this issue? The perfect storm of atropine (mucus) Benadryl (sleep) our heating system, learning how to stay hydrated with feeding tube plus slight air leak of my trilogy mask going right to my eyes. Another sh*t storm side adventure to the nightmare. I use lots of eye drops...
  8. F

    Trouble with Tobii Dynavox

    My mother has ALS and is able to only move her eyes, with some minimal movement of her left hand. She has been using a Tobii Dynavox to communicate. It has never been easy for her, but she has made it work. In the last few days, she has had more and more difficulty typing letters, such that at...
  9. C

    A Complicated Case

    Good afternoon. My name is John Marburger. I am 42, a retired Naval Officer and cancer survivor with some oddities at that go along with it. Apologies in advance for the length of this post and MANY thanks in advance for those of you reading or responding to it, especially those fighting this...
  10. KarenNWendyn

    Good one-line jokes

    I found these on line. Enjoy. Today at the bank, an old lady asked me to help check her balance. So I pushed her over. I bought some shoes from a drug dealer. I don't know what he laced them with, but I've been tripping all day. I told my girlfriend she drew her eyebrows too high. She seemed...