Scared

[Frizzel]

Hold your head high if you can Captain!

I am so looking forward to meeting you in heaven Captain Al. It's ok if others don't believe the way we do that there is an after life. I think of the joy we will have. No more pain, no more sorrow...Jesus said in the Bible in John 14 that He is going to prepare a place for you...for us....I think you'll be doin some serious fishin...probably won't be hooks cause it would hurt the fish. Still...I'll meet up with you to catch a few with my hands like I use to as a kid. I'll teach you if you don't already know how. ha! Back you fish monger you!

Big Hug! THank you for being who you are to many of us here on the forum. In the twinkling of an eye.... Peace......

Frizzel

 

[Frizzel]

Al's

You got that right!

 

[MtPockets]

Amen to the 's

I thank God that He is a faithful and "JUST". A God full of "MERCY AND LOVE". For without His love, mercy, and forgiveness, where would we all be?
Don't answer that. :-D

I love the forum and all the wonderful friends I have made here in the World Wide Web...... You have been such a blessing and continue to be every day of my life. I just wanted to say that, while I have the chance, for who knows what tomorrow might bring.

I also wanted to share a program I have started to try to find time or make time to do before it's too late. It's called, "letters from dad". It basically is writing letters to all my kids. grandkids, wife, loved ones, etc. telling them what they have meant to me in my life. As many letters as possible before my time runs out. Telling them of the love I have for them and how they have been a joy in my life, just to have known them and loved them. Just in general to give them a blessing from me to them directly in writing, so that when I am gone they can have something to read and think back about the times we shared together, our hopes, dreams, fun times, and our faith.

In the old testament there are many times where you see examples of the fathers praying a blessing over their children, and asking for Gods' protection for them. I think this is more important than any material things we might leave them. It might help comfort them after I am gone.

Just a thought to share with you to think about. :wink:

God Bless
Capt AL

 

[patricia1]

Hi guys Today a social worker came over to talk to us from our community hospital ,to see how we were doing.As soon as she started to ask me questions I started to cry She made me realize how sick I was I never really was aware of it/ I try to forget I have als and keep a smile on for my family and friends But when she said I know the life you knew is not over, but very different ,I had to leave the room.Then she asked me what enjoyment I have in life .Again I left >She must have thought I was nuts, I cried more today then I have in the eight years I have ALS. I guess with the progression of the disease ,I realize I dont have that much time. And my husband My dear husband I feel so bad for him. I used to do everything now he is doing everything I feel like a burden to him. I know I still have enjoyment in my life ,but it is shadowed by this damn disease. I am sorry I am just feeling sorry for myself forgive me Pat

 

[hboyajian]

Dear Patricia, you are never, ever a burden. I am certain your husband is honored to care for you. This is what we are here on Earth to do, to love and care and share both joy and sorrow. I know I feel most alive in my own life when I am giving in some meaningful way. To a person with ALS it may feel hard because you can't give in all the ways you used to do, but you give all the time now, with your wisdom and love. That is a most precious gift.

 

[Al]

Don't feel bad or sorry Pat. You still give a lot here and can continue to. Remember, One day at a time.
AL.

 

[midwestgirl]

Pat
This disease is horrible, there is no doubt about that. Please don't feel bad for your feelings and tears. Sometimes tears can be good, it just gets out some of the frustration. It does not take much for me to have the faucet turned on, and we all get scared for ourselves and our loved ones. When my mother was first diagnosed and I was telling my co workers, I just had a major meltdown at work. I had to go in my office, close the door, and just let the tears flow but I felt better afterwards. Everyone at work has been caring and supportive, always asking how mom is doing.

Captain Al, I love your idea about writing letters to our loved ones telling them how much they mean to us. And that idea is good for all of us, not just those with ALS. As we all know, no one person knows when their last day will be. If there is anything good about ALS, it is that it does give us time to reflect and tell our loved ones how much we love them, and how much they mean to us. Honestly, I feel closer with my mother now than ever before. We always say how much we love each other, and I have probably hugged mom more in the last year, than in all the years previously.

 

[CindyM]

Patricia-thanks for being so open and honest about your feelings. You shared thoughts that everyone experiences from time to time and we all need to be reminded of that. PS: don't feel bad about any of it. We are all entitled to a little breakdown now and then! Sincerely, Cindy

 

[brooksea]

Dear Patricia,

I agree with hboy, I'm sure your husband cares for you deeply and would do anything to help you. I feel this way for my husband PAL. I'm sure he is very concerned for you and does not look upon your situation as a burden. I also am a crier, and was doing just that yesterday at the clinic during my husband's check up. Sometimes we just can't help it and I think anyone that deals with this disease understands that.

My thoughts are with you. Stay strong!

CJ

 

[lostinlouisville]

I am so sorry for what you and mum are going through. I see a little blessing or maybe a big one. It is great that you have had this time to reconsile with mum. My Dad passed last Jan. He killed himself not because of any disease, He just wanted to go I guess. We had some unresolved issues which made a horrible death that much harder to handle for me. I often think of what I would have said to him if he would have called that horrible night to let me know what he wanted to do. I just pray I would have told him how much I loved him and he would have said I love you too. I am so glad you have had this chance with mum and I know as mother myself how much it would mean to me if my daughter rubbed my hair or arm. I think you are saying it all with those actions. i will keep you in my prayers.

 

[fiddleplayer51]

Dear Lost,
I just wanted to say how sorry I am for your Dad's passing and the way in which it happened. I can imagine the lingering grief you must feel because you were unaware of what he was thinking of doing and then did that awful night. Unresolved issues are so painful and I'm sorry for the suffering you've experienced because of not having been able to say goodbye.
I hope you can find some peace somehow. I'm sure your Dad knew you loved him.
Take care. I'm glad you posted and told some of your story.
Peace,
Jane

 

[CindyM]

I agree, Lost. Sudden death is the hardest to handle. I am glad you decided to join us and glad that you felt so free to share. This is too much to bear alone. Talk to us anytime! Cindy

 

[MtPockets]

Dear Lost, my heart goes out to you. I can not imagine dealing with all the issues you must have had to face with all this. Please know that we are here for you any time. We care, and try our best to help one another through times like these in our lives.

Many of us can learn from the things you have shared. Thank you so much for feeling you can trust us. For those of us who still have unresolved issues with family or friends, maybe this is a wake up call to not put them off any longer. Pick up the phone, send an e-mail, letter, or what ever it takes to resolve these issues before it is too late.

Thanks again Lost and may God grant you peace.