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  • Hi Patricia,

    I saw on the message boards that you've had experience with Dr. Rothstein. My sister-in-law is considering getting a 2nd opinion from him, as she was recently diagnosed with ALS. During your appointment, did they discuss treatment options and the research they're doing? I know Dr. Rothstein will definitely be able to rule the ALS is or out, but we're really hoping to get some type of treatment plan also. Thanks so much for any more information!

    ~ Lynn
    May we let go of anything that troubles us, and let this new year sparkle with love, kindness, and joy~ love you my friend
    sharon
    My Christmas wish for you and your family is to live in Peace Harmony Laughter and Love and know how Beautiful You shine so bright with your Love and Light! I just want you know how much you mean to me ... we have never met in person, but you are known to me and stay in my heart. I feel we have been friends forever ....
    Hi Patricia,

    Good day. I saw in one of your posts that your PALS have twitching before weakness. And that his EMG was clean only to have it "dirty" a few months later. I got a clean EMG just this Wednesday. The neurologists test both my legs and left arm. all were negative. I dont have other symptoms other than twitching. Did your PALS only have twitching as his first symptom or there are other things? Is he Bulbar onset? thanks a lot.

    anxious06
    l guess if they did my tongue it would have been positive but that was obvious
    l eventually got a dirty emg but not right away
    HI Patricia. I wasn't arguing with you--was just surprised. My EMG in my legs is clear--and it's obvious even to the doctors that something is dreadfully wrong--we just don't know what--because it's all UMN. Arm EMG has never been clean on mine.
    For some it has improved strength and slowing of progression. Are you in the trial? Maybe you are on the placebo
    I apologize...in re-reading my post...it is NOT the official ALS dx..it is suppose to say MG...sorry!
    Hi, I have been reading your post and is there any place in this forum or some where else on the internet that you have your story? My boyfriend is going through this process and at this point what we notice is speech, swallowing and breathing. Recently some crapping in his left hand. He has had two dirty EMG, but we are being taken down the not sure road and will soon be starting Predinsone for treatment of MG (official dx has not been made...blood work neg for anti bodies). Just would like to know more about your story. I felt compelled to you as soon as I read some of your post. Thank you for your time.
    No, no vaccination, other than a flu shot (probably) that year sometime. I needed them at work due to flying with sick germy passengers lol. I got the shot most years, probably missed some along the way. I really don't know. But, shot would have been in autumn, problems were first noticed late summer.
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