Rapid decline is shocking!

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hangingon1

Distinguished member
Joined
Jan 29, 2012
Messages
199
Reason
Lost a loved one
Diagnosis
09/2009
Country
US
State
Georgia
I have been a caregiver for my wife for over 2 yrs. She has had her ups and downs. This last episode caught me in unbelief. On a recent Tue. she was evaluated by hospice and told that she was doing too good and was going to be bumped off the program. This despite the increasing problems with swallowing. Two days later, she was incoherent and unalbe to drink or eat. Yes, it can happen that fast! Over a horrible weekend, I soul searched and hurt for my wife for whom I could not help. That is the most terrible feeling. Finally, I called hospice and she went back to the center. She has been there two days and her condition is not good. She continues to be out of her head (FTD) and will not eat or drink. Her Dr., who is a neurologist, said that she probably would not leave hospice. For those in doubt about first hand experience--Don't be. The kind people on this forum see what is going on and they do not lie. A patient may change in an instance and it is just the nature of this beast of a disease! Hang tight all that are called on to be strong.
 

panguinjen

Senior member
Joined
Mar 27, 2012
Messages
523
Reason
Lost a loved one
Country
US
State
CA
I'm sorry to hear of the change in your wife's condition! Our prayers and thoughts are with you both...

Jen
 

WellsRuby

Distinguished member
Joined
Mar 16, 2012
Messages
186
Reason
Loved one DX
Diagnosis
03/2011
Country
US
State
Texas
Sending prayers to you and your wife.
 

ottawa girl

Very helpful member
Joined
Jun 14, 2012
Messages
1,506
Reason
PALS
Diagnosis
04/2012
Country
CA
State
Ontario
Sending prayers for your wife and you and your family. Wishing you courage and peace during this so difficult time.
 

scotslassie

Distinguished member
Joined
Mar 7, 2012
Messages
169
Country
EU
State
***
so sorry to hear about your wife. Things can change so quickly. Thinking of you. x
 

ECpara

Senior member
Joined
Jan 7, 2012
Messages
605
Reason
Lost a loved one
Diagnosis
02/2012
Country
US
State
GA
I am so sorry. This disease is terrifying for those of us that are only at the beginning. I will be praying for you and your wife.
 

jamiem

Distinguished member
Joined
May 4, 2012
Messages
147
Diagnosis
08/2012
Country
US
State
TX
I am so sorry for you and your wife. I think everyone on this forum understands that things can change so quickly.
 

skipper66

Very helpful member
Joined
May 20, 2012
Messages
1,478
Reason
Lost a loved one
Country
US
State
ILLINOIS
I will be praying for you and your wife. Thank you for being a loving husband and doing the best that you possibly can with this cruel disease. May God bless you and give your strength. We all care on here. Hugs to you, Kim
 

chrisroski

Active member
Joined
Apr 12, 2012
Messages
93
Reason
PALS
Diagnosis
01/2012
Country
US
State
Pa
My thoughts and prayers are with, and yes things change fast, and it scares me and everyone I'm sure what the future holds for us, I chose not to think about it or I would go insane. One day at a time, just like someone trying to stay clean from drugs or alcohol, thinking to much can make you crazy, and just get you upset, God be with you and your wife, and give you all the strength you need to handle this. Take care.
 

ruthiep

Distinguished member
Joined
Feb 28, 2011
Messages
173
Reason
Loved one DX
Diagnosis
01/2011
Country
US
State
AL
Prayers being sent for your courage and strength. Take care

Ruth
 

vzandt

Senior member
Joined
Nov 12, 2011
Messages
570
Reason
Lost a loved one
Diagnosis
04/2010
Country
US
State
N.H.
I'm sorry Hangingon
 

alador

Active member
Joined
May 27, 2011
Messages
76
Reason
Lost a loved one
Diagnosis
12/2011
Country
US
State
NC
Prayers and caring thoughts for you during this time.
 

Jennifer D

Active member
Joined
Dec 19, 2011
Messages
74
Diagnosis
03/2012
Country
US
State
New York
Dear Hangingon1

Sorry your wife is not doing well......Please know that you and your family are in my thoughts and prayers.

Jennifer
 

Compass Rose

Distinguished member
Joined
Jun 20, 2012
Messages
133
Reason
Loved one DX
Country
US
State
WA
I'm so sorry about the sudden change. Sending wishes for strength and peace your way.
 
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