caregiver

  1. R

    Used Permobil M300 Powerchair

    Selling a used Permobil M300 powerchair. In good condition, wasn't used too long. Had a few adjustments made, such as caregiver joystick added to the back but this can be taken off. Located in Tucson, AZ, $1000
  2. Nikki J

    Website to look into possibly

    Wellspouse dot org. I saw it mentioned elsewhere. I didn’t register but it says it has a forum and I saw some links to articles It is website that is not disease specific for caregiver spouses and the many issues confronting them.
  3. S

    New caregiver

    So sad. Husband diagnosed end of December. He's very used to being in charge and making all the decisions. I am a RN/NP. So I know a bit about caregiving. He fights me on all the ways to do things. Slowly he is beginning to listen to me but it's frustrating. I only seem to cry when...
  4. T

    "Important information" template?

    Hi all, I was wondering if anyone has a document/binder to share where all the important information one should know about one's pALS is in one place (contact info for doctors, nurses, etc.; medication list; etc.) I know we should probably have compiled such a thing already given that my...
  5. L

    Rebuilding

    This will probably be my last post on the forum. At the time of Eileen's funeral I weighed 122 lbs, I am now at 134 lbs. I'm not sure if it is just my nature or my strong belief in God, but even before the funeral, I felt that God did not want me to waste the rest of my life in grief. I made...
  6. T

    Getting Help, Caregivers

    We have a mix of ways that we have help. I thought I'd share them. I'd also be interested in hearing your ideas. For reference, my Dad is mostly immobile now, (diagnosed the end of 2018.) All transfers are with a Hoyer lift. He does get transferred to a commode or his PWC, (mostly if we're...
  7. A

    Depressed

    Having a difficult day. More progression and the grief that goes with every loss is hard to deal with. I know I m depressed but I m still handling everything. My pals depends on me and I want to be strong for him, and be the caregiver he deserves. I m frightened and overwhelmed, it is all...
  8. R

    Sharing the road

    My Pals started a downward spiral 30 days ago. Could no longer talk, appetite diminished, slept 14-15 hours at night and often a long nap in the afternoon. I asked twice if she wanted our granddaughters to come decorate for Christmas and never got a response. I had them cone out anyway and she...
  9. T

    Tobii Dynovox Eye Gaze i series LIKE NEW

    Unfortunately, I lost my husband, March 4,2016; after a 3 year battle with ALS. I was his full time caregiver. We made the mistake of waiting too long to try to get this device, he was not able to use it like we could have if we had it earlier. We used it maybe 4 times, and only a few minutes...
  10. G

    Sleeping with Your Computer

    Not porn, sry! ;-) I searched the Forum and found no definitive answer to this: How do you manage your computer whilst in bed and sleeping? On Every90Minutes, they mention a wall mount setup that's 1) No longer available, and 2) Requires tweaks. I do have a rolling ConnectIT mount that...
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