1. Tomswife

    Grants to help with caregiver costs

    Some of the ALS ASSOCIATION Chapters have grant money to help PALS/CALS with the cost of caregiving. We received $2K from the NY Metro chapter. There was an application, and I had to submit detailed invoices that show per diem charges. It is possible that other ALS foundations can support...
  2. Jhettinger

    Caregiver Checklist for your use

    for your use
  3. Jhettinger

    Caregiver Shoes

    What are the best / safest shoes, my cg uses crocs. they are dangerous
  4. wtlpc22


    . I need wisdom, making a decision, or some kind of change. It is out of love for my wife for 41 years. My daughter Hannah now 24, has devoted her life to caring for me. They have little energy to do anything else. That is what I am concerned about. I have lived 16 years with ALS DX JAN 2006 @...
  5. R

    Used Permobil M300 Powerchair

    Selling a used Permobil M300 powerchair. In good condition, wasn't used too long. Had a few adjustments made, such as caregiver joystick added to the back but this can be taken off. Located in Tucson, AZ, $1000
  6. Nikki J

    Website to look into possibly

    Wellspouse dot org. I saw it mentioned elsewhere. I didn’t register but it says it has a forum and I saw some links to articles It is website that is not disease specific for caregiver spouses and the many issues confronting them.
  7. S

    New caregiver

    So sad. Husband diagnosed end of December. He's very used to being in charge and making all the decisions. I am a RN/NP. So I know a bit about caregiving. He fights me on all the ways to do things. Slowly he is beginning to listen to me but it's frustrating. I only seem to cry when...
  8. T

    "Important information" template?

    Hi all, I was wondering if anyone has a document/binder to share where all the important information one should know about one's pALS is in one place (contact info for doctors, nurses, etc.; medication list; etc.) I know we should probably have compiled such a thing already given that my...
  9. L


    This will probably be my last post on the forum. At the time of Eileen's funeral I weighed 122 lbs, I am now at 134 lbs. I'm not sure if it is just my nature or my strong belief in God, but even before the funeral, I felt that God did not want me to waste the rest of my life in grief. I made...
  10. T

    Getting Help, Caregivers

    We have a mix of ways that we have help. I thought I'd share them. I'd also be interested in hearing your ideas. For reference, my Dad is mostly immobile now, (diagnosed the end of 2018.) All transfers are with a Hoyer lift. He does get transferred to a commode or his PWC, (mostly if we're...