Shoulder/neck pain and swallowing issue. - Bulbar?

[nicklasj401]

Hello.

I have some issue, I wanted to get help with. I have a really bad right side shoulder pain/weakness that goes down to the arm and hand. But my main concern is that I have some weakness in my face, when I talk I get easy tried and have some swallowing issue, I can drink and eat fine no problem, but if I swallowing without any thing, like just saliva, is hard, and feels werid... like I cant get it down and can make me gag "reflex"

If I take muscle relaxer like Klorzoxazon, it becomes MUCH easier to swallow..

Is this a case of Bulbar onset? I mean, if it was Bulbar, muscle relaxer should not do anything to help with it right?
My mouth become is dry really fast aswell.

Best Regards.

Note: I dont have any tognue fasciculations as it is right now.
Most neck pain in right side, but can be left as well.

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[lgelb]

I don't see any reason to think of ALS, but would see a doctor and discuss imaging/physio for your shoulder.

 

[nicklasj401]

I don't see any reason to think of ALS, but would see a doctor and discuss imaging/physio for your shoulder.

Hello, and thanks alot for your reply! Im just worry aswell as I feel that my lips under my nose is weak and sometimes has numbess that come and go...

Tomrrow im going for a laser treatment, cause the doctor said I had "miosis" in my right shoulder? I will try and fix that and see how it goes.

 

[Nikki J]

Miosis is an eye finding? It doesn’t sound like als at all. You sound rather like this guy( not saying this is what you have of course) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6347942/

 

[nicklasj401]

Hello Nikki.

To be fair, I dont know. The Doctor just look at my shoulders and told me that my right was elevated and he could see Miosis when he press on it?

I got the first laster treatment yesterday on my shoulder and neck, and I feel it helped, not fully. But idd helped.
My main concern is that both my upper lips fatigue really fast if I talk or move them alot, , is that hear of as a sign of Bulbar?

 

[Nikki J]

I think perhaps there is a translation issue? I assume the exchange was in Swedish? No it doesn’t sound like bulbar to me

 

[lgelb]

Myositis (muscle inflammation)? Some forms are immune-mediated, but for limited, benign forms, that are not related to any other condition, high-intensity laser treatment is an emerging method of pain control, though other things are usually tried first.

 

[nicklasj401]

@Nikki J Hello, yes there was a traslation issue, sorry. it was meant as "Myoses" I think is how it spell in english?

For the last 2/3 days I got really tried when I talked in my Jaw, that went away today and had none issuse, does early ALS symptoms come and go like that?

 

[lgelb]

No.

 

[nicklasj401]

Hello.

I have some new symptoms that keep getting worse.

I do still have pain in my right shoulders, but over the last days I got pain in other areas aswell.

3 days ago I got pain in my right foot and leg when I walked. and now I have pain in left leg/foot aswell. even if I dont do anything, and on top on that I deal with upper back pain that come and goes....

I do still has swallowing issue, but only some time/days and then it goes away. I can have days where im chocking on water and have hard time swallowing, and then days where there is NOTTHING.

I feel the weakness in both my shoulders and back, but I still lift a 10-12KG Dumbbell "3x 12" over my shoulder without a big issue...

is this really how ALS start? I can feel it spread to every part of my body with pain... and the swallowing issue that come and goes it scares me..

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[Nikki J]

No. This decidedly is NOT how ALS starts. Pain is not a presenting symptom of ALS and neither are the symptoms all over. Feeling weak is not clinical weakness

Please work with your doctor. In the meantime read this Important - READ BEFORE POSTING! Answers to common concerns about possible symptoms

 

[nicklasj401]

Hello.

Some times has past now, and I have some question as things are progression in the worng way..
Im getting weaker and weaker. Mainly in my right foot, wich hurt when I walk, and leg giveing up. But im getting weak in all my limbs? right/left shoulder and both arms giveing up fast.. No clinical weakness. It just spread so fast randomly in my body. Like FULL BODY weakness.

But my swallow issues has been gone for 4-6 days now.

I Guess that is not normal in ALS?