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  • Hi Sophia -- Thank you for reaching out. I'm so glad your husband is progressing slowly. We are hoping for the same thing and we are starting radicava in Jan. I will reach back out to you soon after the holiday with some questions. I appreciate your offer to help. I wish you and your family a peaceful holiday.
    Dear Sassy - I appreciate your response. In spite of circumstances , it's helpful that his progression is slow. May it continue to be so. May blessings abound.
    My husband was formally diagnosed with ALS in February of 2018, although he has had foot drop for over two years. We have been told his progression is slow and did get a second opinion at a highly regarded ALS center. I think we were both afraid to ask many questions about his progression but are so very, very thankful it appears to be progressing slowly at this time.

    I just wanted to thank everyone on this site for helping us as we lurked over the past year. I continue to be amazed at the knowledge and kindness offered to so many CALS and PALS.
    Sassy
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