Please Help Anyone? My name is Lee Algee and I live in Memphis, TN. I have just exsperieced probably the worst 48 hrs of my life. I will give you the basics first and move forward. My struggle over at least the last four years of my life came to a drastic conclusion today. When asked by friends and family about ALS I did my best to tell them I may have the disease and showed them physical conditions also. It is amazing the lenghts people will go to in order to deny this. I cant get in to see a Dr. about this cause its hit so fast but for me I dont need a stamp if approval, I know what I have. I have known for years that I have had to deal with all the nasty little symptoms this beast has to offer. In order to try and prove my disease to my family I asked them to do one thing. Get online and get a full copy of ALS symptoms. I said now not every symptom on this list I have but every symptom on this list I have. I believe if you could show this and all your medical problems over the past few years to the people that need to know you could spend more quality time than looking for a magic cure. Now yes get a Dr.'s diagnosis but dont run here, there and put your life on hold to wait for some stamp of approval. Go liveI have been a caregiver for my wife for over 2 yrs. She has had her ups and downs. This last episode caught me in unbelief. On a recent Tue. she was evaluated by hospice and told that she was doing too good and was going to be bumped off the program. This despite the increasing problems with swallowing. Two days later, she was incoherent and unalbe to drink or eat. Yes, it can happen that fast! Over a horrible weekend, I soul searched and hurt for my wife for whom I could not help. That is the most terrible feeling. Finally, I called hospice and she went back to the center. She has been there two days and her condition is not good. She continues to be out of her head (FTD) and will not eat or drink. Her Dr., who is a neurologist, said that she probably would not leave hospice. For those in doubt about first hand experience--Don't be. The kind people on this forum see what is going on and they do not lie. A patient may change in an instance and it is just the nature of this beast of a disease! Hang tight all that are called on to be strong.