- Jun 2, 2007
- Learn about ALS
Hello everyone, dont know if you remember me or not but i havent been on or posted in a while. Went to the als clinc and had another emg it was fine, i doesnt matter because i know i have als. I am 99% sure. When i started twiching almost 2 years ago i was worried that it might be als but then everyone keep saying twiching with no weakness is good so i thought their was a chance that maybe i didnt have it. Well nearly 2 years since i started twiching i can barley lift my arms above my head! My shoulders are wasting away so much so that none of my shirts will stay up on them. I can barley left my 2 year old son. I cant blow dry my hair without stoping and taking frequent breaks in between. I can type fine still because their is no lifting involved with my arms at all. So i am asumming its my shoulders that are the biggest problem right now. When i went to the als clinc about 5 months or so ago my exam was ok and he wasnt that concered even though my reflexes were very brisk and my tonue was twiching and my arms were weak. The weakness seems to have got a whole lot worst now. like i said i can barly lift anything high, if i try my arms start shaking very bad. I know i have ALS, i am not freaking out about it but i know i have it. My als doctor wants to see me back next month, i will go but no matter what he says i cant think of another reason why i am losing so much strenth and why my shirts wont stay on my shoulders. I am trying to accept it as best i know how. Thank you guys for all the suport. This board is amazing.