crystalkk

Hi Crystalkk,
On and off for years I've been searching for answers and then today I found your post
"losing use of your hands"
I nearly cried because what I was reading is happening to me right down to the facial twitching but I also felt so much relief because these symptoms are real and it is a real condition.
It was a long ago when you posted this topic but I do hope you are doing well and life is being good to you and if you do log on again. Thank you

Hi,
Just wanted to ask you about your progression and how it started?
I had mainly bulbar symptoms for years before balance problems began.

Hi again- how are things going? Any new answers/ leads? All the best- Marianne

Hi, Crystal- Haven't seen you for awhile. How are you & how are things going? Take care- Marianne

Hi crystal....I left a message on my visitor page for you. Sleep tight! Lovelily

hi crystalkk thank you for liking my tattoo people kept saying you werent going to do it i proved them wrong i have full sleve tattoos on both arms but still some area to do more .its funny though the looks you get from people like your trash or no good .well i hope all is ok with you tell me alittle about yourself and your dx .i have bulbar als but it has spread throughout my entire body but i walk workout can still work to a limited amoynt of hrs per day well take car jeff

Thanks, Crystal. Babies are great! I'm not responding on my thread because I want it to quiet down, in light of Kay Marie's tragic loss. But, I do appreciate your sentiments! Marianne

thank you, sweet friend
Your kids are really really sweet
how are the tests/dx going?
Love to you and yours

Such a beautiful family.......our prayers are with you.

bachelor tonight! and let me know about what I asked you, ok?

hi, thanks for the compliment,,,your kids are sooooooooooo cute too...

but still take photos and send. Please

thank you, dear friend
Have you a garden?
Love to you

I agree, I was shocked! I actually yelled out loud to the TV and my kids are like 'whats wrong mom?' I mean I Really cant stand that Vienna, she is soooo strange.....
I will be thinking of you this friday and my appt/emg is the following friday........yikes!

any news on that appt?