nancyintexas
New member
- Joined
- May 3, 2015
- Messages
- 2
- Reason
- PALS
- Diagnosis
- 10/2014
- Country
- US
- State
- Tx
- City
- Universal City
Hello!
Glad to find this forum & this is my first post.
I'm not sure when they consider it a diagnosis. In December 2013, I started noticing a limp. After about 6 months it wasn't getting better, so I started some PT. For the first 6 wks I was doing exercises for hip & back, when they thought it might be my foot. So I went 6 more wks. Not really improving so was referred to a neurologist. Had all the tests done in Oct 2014. Pretty stunned when he said he was pretty sure it was ALS, but said I would need a second opinion. I was fairly sure he was very wrong. I have had Type 1 diabetes for 35 yrs & I was pretty sure it might be neuropathy. The second neurologist was seen in Jan 2015, & wasn't willing at that point to confirm ALS. Wanted me back in April for more tests & when I met with her 4-29-15 she said it was in her opinion ALS.
So sorry for the lengthy intro, but I am wondering how long it took others in this group to be diagnosed, & how they figured their diagnosis date.
Many thanks.
Glad to find this forum & this is my first post.
I'm not sure when they consider it a diagnosis. In December 2013, I started noticing a limp. After about 6 months it wasn't getting better, so I started some PT. For the first 6 wks I was doing exercises for hip & back, when they thought it might be my foot. So I went 6 more wks. Not really improving so was referred to a neurologist. Had all the tests done in Oct 2014. Pretty stunned when he said he was pretty sure it was ALS, but said I would need a second opinion. I was fairly sure he was very wrong. I have had Type 1 diabetes for 35 yrs & I was pretty sure it might be neuropathy. The second neurologist was seen in Jan 2015, & wasn't willing at that point to confirm ALS. Wanted me back in April for more tests & when I met with her 4-29-15 she said it was in her opinion ALS.
So sorry for the lengthy intro, but I am wondering how long it took others in this group to be diagnosed, & how they figured their diagnosis date.
Many thanks.