Gelthling
Distinguished member
- Joined
- Apr 7, 2009
- Messages
- 109
- Reason
- Loved one DX
- Diagnosis
- 0/2009
- Country
- AUS
- State
- NSW
- City
- Sydney
I know few of you have read my previous posts - just wanted to do a little update.
At the moment mum is in hospital. I have been worrying about her all weekend as she has been texting me that she wont drink anything at all if she has to drink thickened fluids, and the most she eats is Vitbrits for breaky, a youghurt for lunch and a few mashed veges for dinner. Well, since the weekend I was getting texts that she had hardly been eating. She has said she has had gastro for the past 3-4 weeks too. On Tuesday we had MND Clinic visit, she had messaged me at 10:30 night before she ddnt want to go as she couldn't get to sleep. Then again at 6:45 am (I;m still asleep) that she had gatsro and didnt want to go. I had to take her as they are the only ones tracking her progression and symptoms.
Then she messages me her carer is late, so when I got there I had to shower her etc. ( I found out later she had actually cancelled them the day before!) We drove the 1 1/2 hour to the clinic - mum was constantly getting me to help her to the toilet, saying she was going to be sick, getting hot etc so she didnt have to answer to many questions. When they asked about a Peg she said she'd try it. Asked if wanting to go into nursing homes she said Yes - I was so shocked I asked when? She said now! Anyway,got her out of there, they recommend I take her to our doctor. I get her an appointment that afternoon - he discusses the Nursing home - she says no.
That night just after I left my uncle visited and pealed veges etc for her. he left - she then proceeded to message my brother at his work if his partner was at home because she needed her veges mashed ( she has been doing it all herself till this point!). She then pushes her emergency button as she thinks she is chocking. My uncle stays with her till 9:30 that night. At 1am, she pushed the emergency button, and my brother and uncle turn up - and she wants a CUDDLE! Then when my brother got home,she continued to text and ring him (she cant talk!) until about 3 in the morning.
The next day she tells the carer she couldnt sleep because of her Gastro! (No mention of that in the texts, or had I seen any sign when I ha been helping her in the toilets for the last few days!). I called our GP and case manager- they think she may be dehydrated so take her to hospital. There, a neuro looks at her, mentions a peg - mum says no - asks does she have gastro - No, then askes me if her texting is as confused as her writing - I say YES! Next night they put her in a ward - and we get texts at 12:30am that They are killing her! I find out later she had been pushing the nurse button every 2-5 minutes after I had left her at 10:30pm, so they had to take it off her.
We are waiting to see when and if she comes out of hospital - as I think the staff are wondering if she is safe to return home on her own..even with carers during the day.
Lots more happened - but this is too long already - sorry just not sure whats going on with her!
At the moment mum is in hospital. I have been worrying about her all weekend as she has been texting me that she wont drink anything at all if she has to drink thickened fluids, and the most she eats is Vitbrits for breaky, a youghurt for lunch and a few mashed veges for dinner. Well, since the weekend I was getting texts that she had hardly been eating. She has said she has had gastro for the past 3-4 weeks too. On Tuesday we had MND Clinic visit, she had messaged me at 10:30 night before she ddnt want to go as she couldn't get to sleep. Then again at 6:45 am (I;m still asleep) that she had gatsro and didnt want to go. I had to take her as they are the only ones tracking her progression and symptoms.
Then she messages me her carer is late, so when I got there I had to shower her etc. ( I found out later she had actually cancelled them the day before!) We drove the 1 1/2 hour to the clinic - mum was constantly getting me to help her to the toilet, saying she was going to be sick, getting hot etc so she didnt have to answer to many questions. When they asked about a Peg she said she'd try it. Asked if wanting to go into nursing homes she said Yes - I was so shocked I asked when? She said now! Anyway,got her out of there, they recommend I take her to our doctor. I get her an appointment that afternoon - he discusses the Nursing home - she says no.
That night just after I left my uncle visited and pealed veges etc for her. he left - she then proceeded to message my brother at his work if his partner was at home because she needed her veges mashed ( she has been doing it all herself till this point!). She then pushes her emergency button as she thinks she is chocking. My uncle stays with her till 9:30 that night. At 1am, she pushed the emergency button, and my brother and uncle turn up - and she wants a CUDDLE! Then when my brother got home,she continued to text and ring him (she cant talk!) until about 3 in the morning.
The next day she tells the carer she couldnt sleep because of her Gastro! (No mention of that in the texts, or had I seen any sign when I ha been helping her in the toilets for the last few days!). I called our GP and case manager- they think she may be dehydrated so take her to hospital. There, a neuro looks at her, mentions a peg - mum says no - asks does she have gastro - No, then askes me if her texting is as confused as her writing - I say YES! Next night they put her in a ward - and we get texts at 12:30am that They are killing her! I find out later she had been pushing the nurse button every 2-5 minutes after I had left her at 10:30pm, so they had to take it off her.
We are waiting to see when and if she comes out of hospital - as I think the staff are wondering if she is safe to return home on her own..even with carers during the day.
Lots more happened - but this is too long already - sorry just not sure whats going on with her!