Gelthling

Hi Gelthling, I see you're from NSW and your mum had the bulbar onset/FTD variant of this wicked disease. My mum too has been diagnosed with the same condition (early Oct 2012) and the disease has progressed quite quickly since then.

We are in Sydney and my brother and I share the care of our mum. She was diagnosed at age 60, how old was your mum if you don't mind me asking.

All the best and regards

Martin

Hi Tracie,
Good to here from you. I hope you are well.
Wow almost 2 years since your mother passed away . I didn't think it was that long ago,

I am doing ok, talking and walking are my main issues, rest is fairly stable.

Work offered me a package which I took , so I am now a man of leasure.

Cheers for now
Peter

I am so glad that you wrote to me. Ya know I really think that your Mom is close to you and never very far away. Just trust in that .. I want my husband and kids to know that and believe it.... Hugs to you, Linda

Hi Tracie, I have wondered how you have been doing? I would want my girls to remembe all the good times.. Be glad that i would no longer be suffering . You are like my girls also. Very caring and loving. Take care,It was so good to hear from you, Hugs, Linda

Hi Tracie, I am just stopping by to send you a hug and let you know that you are in my thoughts. xo

Hi Tracie,
Hope things are going well with your mother.
I didnt know if anybody would pick up on the Ned Kelly but it is appropriate for me.
Many years ago when i started work (tender age of 16 as an apprentace i had a beard (not as big as that though) In the workshop nicknames were all the go and someone came up with Ned Kelly for me. (this was better than some others around so it stuck) Also a few years later i started target shooting so the name was still fine. Many people at work ended up calling me Ned including the managers, some didnt even know my real name.

I am in the process of setting up "communication" with Anastasio (think that is right) in Adelaide as i think she is having a tough time of it at the moment.
I agree this is a great forum and it is nice to see many on it participating in trials and reporting back. Hopefully one day soon something positive will come out that will be a benifet for all.

cheers
Peter

Hi Peter,

Yeas it is nice to see another aussie - I cant tell you how much this forum has done for me - even as a carer and not a sufferer - though they do have different medical ways in U.S. Unfortunately mum doesn't want to know what is to come, so she wont even look at this forum!

I'm glad you found it, and hope your getting all the assistance your needing - keep in touch.
Tracie

Hi Gelthing,
Nice to see another Aussie on the forum.
This a bugger of an illness isnt it.
I am 52 years old i guess about the same as your mother.
In reading some of your previous posts your mother seems to be a bit more advanced than i am, authough i use a walker to get around (balance problems as you are aware of) but i can do most other things un aided although slower than before.

I hope, like we all do there is somthing around the corner for us.

I am please i found this forum, they seem to be a great bunch, and some have a wicked sence of humour and witt.
I enjoy the follies and get a laugh from them (we all need a good laugh) Aus got a mention in the last one.

Say hi to your mum for me and chin up and as one signature states "we are all in this together"

Cheers
Peter

Yes it was, on my wedding day back in 2004, boy has a lot changed in 5 years!

Hi Gelthling,

I love your avatar picture! Is that you and your mom? Hope you have a good day!

Pam