So I get the phone call about the flavor strips and think OMG, somebody actually gives a $#!%! I've done something that may help pALS themselves while they are still alive! And it's FREE! What more could one ask? Of course I realize it's just a marketing experiment, but hey, they actually CALLED me. Me- the cALS, the wife of someone with ALS. And they aren't even in the healthcare business, although that's what they are looking into. A simple phone call made me so happy!
Hell, I would have taken an email from them and been elated! And they did in fact email me too!
So the next phone call I get pisses me off so bad, I have to tell my son to leave the room and just let me stew in my anger! The tech guy from ALSA that was helping us with obtaining a speech device tells me it's a no go on the one he chose. WTF!?!?!?!?! and WTH? The little ol Speech Pathologist told us at the eval to take these 2 devices home and "play" with them and decide which one he wanted. Then she would send the order for the device to the doc for approval and so on. She gave me her email address and phone number and told me the best way to get in touch was email. Fine. I emailed her on husband's decision. That was over a week ago. Did I get an email back from her? Yeah right! You guessed it - NOOOOOO! So I'm wondering if I will hear from her and made a note on my to do list this morning to try and call her. What kind of "professional" is this idiot? You can't even acknowledge you got the email? So, anyway - ALSA guy calls because apparently she must be afraid to call me...you know, the cALS, the partner of the patient - uh - caregiver! She calls someone totally unrelated to us! "But, why?" you ask. She has told him (ALSA guy) that she must re-evaluate him using the device he has chosen, as she actually has to see him use it or legally she could lose her license. Yet at the original eval we were told nothing of the sort and all could be ordered with a simple email message! This lady obviously knows nothing about what she is doing. I am so pissed at Emory right now I could spit nails. First the PEG fiasco and now the SLP referral crap! :evil:
SO- the ALSA guy is trying to see if she will accept a Web cam eval, as opposed to us having to drive all the way back down there! I'm not holding my breath!:evil::evil::evil:
Anybody using Emory, beware! If you need a speech device or a PEG right now, be afraid...be very afraid!
Oh - this also brings up insurance issues if you are on Medicare! Will a re-eval be approved? I know this because the ALSA guy brought it up. After he gets this device, IF he does, I'm going to make this lady cry. I swear I am! She has no clue whatsoever in her little young life what a pALS goes thru. She will pay, oh, how she will pay...
Hell, I would have taken an email from them and been elated! And they did in fact email me too!So the next phone call I get pisses me off so bad, I have to tell my son to leave the room and just let me stew in my anger! The tech guy from ALSA that was helping us with obtaining a speech device tells me it's a no go on the one he chose. WTF!?!?!?!?! and WTH? The little ol Speech Pathologist told us at the eval to take these 2 devices home and "play" with them and decide which one he wanted. Then she would send the order for the device to the doc for approval and so on. She gave me her email address and phone number and told me the best way to get in touch was email. Fine. I emailed her on husband's decision. That was over a week ago. Did I get an email back from her? Yeah right! You guessed it - NOOOOOO! So I'm wondering if I will hear from her and made a note on my to do list this morning to try and call her. What kind of "professional" is this idiot? You can't even acknowledge you got the email? So, anyway - ALSA guy calls because apparently she must be afraid to call me...you know, the cALS, the partner of the patient - uh - caregiver! She calls someone totally unrelated to us! "But, why?" you ask. She has told him (ALSA guy) that she must re-evaluate him using the device he has chosen, as she actually has to see him use it or legally she could lose her license. Yet at the original eval we were told nothing of the sort and all could be ordered with a simple email message! This lady obviously knows nothing about what she is doing. I am so pissed at Emory right now I could spit nails. First the PEG fiasco and now the SLP referral crap! :evil:
SO- the ALSA guy is trying to see if she will accept a Web cam eval, as opposed to us having to drive all the way back down there! I'm not holding my breath!:evil::evil::evil:
Anybody using Emory, beware! If you need a speech device or a PEG right now, be afraid...be very afraid!
Oh - this also brings up insurance issues if you are on Medicare! Will a re-eval be approved? I know this because the ALSA guy brought it up. After he gets this device, IF he does, I'm going to make this lady cry. I swear I am! She has no clue whatsoever in her little young life what a pALS goes thru. She will pay, oh, how she will pay...
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