I hope you are well and coping with any difficult situations that you are currently facing.
I am after a recommendation for a speech device for my father, a bulbar-onset PALS. He had a trach inserted 3 weeks ago so cannot speak, but his voice was barely discernible in the weeks...
Sometimes I even hate to do a rant like this because I feel like I'm whining. It's taken me 24 hours to get up the courage to put pen to paper, as it were.
Yes, I'm struggling. The why has multiple reasons. These are on no particular order.
1) sleep. Hasn't been going well. Mostly due to the...
My dad went to the speech therapist yesterday (mom called and got an appt before als clinic) b/c his speech is getting worse day by day. IT BREAKS MY HEART!!! My mom told me that she told the lady that she's glad she called to get him an appt since it will take 6 weeks before the...
My wife and I have used this forum as a place to gather information and try to prepare as best we could to help my wife's mother. Roughly a year ago she was diagnosed with ALS and it has been quite aggressive over the last 6 months. At the start, we had done everything we could...
Hi everyone! Do you have recommendations on best places to donate old equipment? We have lots including a bipap and tobi speech device. I was going to donate everything to ALSA but wanted to come here and see if you have suggestions. Just want to make sure they will get to a family who needs it...
Zwhat is the point of
locking the threads on this forum?z
M I was about to reply to the speech device thread with information of a new product by Toby that is far superior to anything on the market and saw that even though the thread was) barely a month without any reply and still totally...
Ironically, the VA delivered the power chair and the assisted speech device from TalkToMe Techologies yesterday and Tom passed away yesterday evening. So...I have a Permobil M300 Power Chair and an assisted speech device that have never been used. The assisted speech device can be used with your...
Finally the VA signed the POs for the power wheel chair and an assistive speech device. Supposedly the assistive speech device has been sent. I emailed the vendor on the wheel chair to find out how long it is going to take and got no response as of yet. I'm wondering if it was a co-incidence...
My PALS speech is getting worse by the day. Right now he still has good use of his hands.
What options are out there to help him communicate while he can use his hands?
Also, what are the options for when he can't use his hands?
I'm curious if I should get one to use while he has hand use...
My husband has been having speech issues for almost 10 months and swallowing issues started within the last 9 months. His speech is almost completely unrecognizable, except for a few words here and there, and his recent complaint is feeling congested off and on for the past week. I have heard...