cals

  1. J

    Multiple symptoms for months

    Well for starters I found this website in a state of my panic and have read others threads about similar symptoms in a search for reassurance. I have been very apprehensive about posting here because I know a lot of people are probably just overexcited or scared and have convinced themselves...
  2. S

    CALS Trip 2019

    I am bringing up the idea of a CALS, past CALS trip again. I really want to make this happen... When I brought it up before, my loss was so new that I just couldn't get it together. If any of you would like get together for a few days or has an idea of a really good place for a CALS trip...
  3. D

    trach questions

    I would like to hear from any pALS or cALS who are living with a trach. I understand the medical and technical side of it, but I am interested in hearing the nitty-gritty ramifications of living with all of that at home. The real stuff. How do you staff, are there lay person family members...
  4. T

    How to Swim in Ocean

    Hi - I'm a cALS to my husband who has limb onset. His fav. thiing to so is swim in the ocean -- anything you all know about that can help him? Thank you!
  5. E

    Won't go to the Hospital Bed!

    Cals here. Husband dx in 2013. For the last two years, he has lived in a recliner (sleeping there). Of course, goes to the power chair when need be. But, now he has zero neck muscles and needs suctioning several times a day. We have a wonderful hospital bed with all the bells and whistles...
  6. T

    Ques. on Brainstorm (NurOwn Trial)

    Hello: I am a cALS for my husband. I have questions about the Brainstorm Cell Therapeutics (Trial of NurOwn for ALS): 1) What are the pros and cons of this trial? 2) It seems to have promising anecdotal info. -- why aren't more people doing it? 3) When will results be published? 4) When could...
  7. K

    Protecting Against Heel Sores

    My PALS is beginning to feel some sensitivity on his heels due to being in bed longer at night and trying to keep his feet up during the day. I thought about rolling up a towel really tight and placing it under his ankles at night or using a roll pillow. I also know there are boots but wondered...
  8. Nikki J

    Making things easier Part 5

    Part 3 is here with links to previous https://www.alsforums.com/forum/other/40721-making-things-easier-part-3-a.html Part 4 is here https://www.alsforums.com/forum/other/42231-making-things-easier-part-4-a.html I like to revisit this topic periodically for several reasons. I do think this is...
  9. K

    Why We're Here...

    Hi all, Just wanted to underline how grateful I am for this forum. This morning, Mum had her first really rattling experience with trouble breathing, a series of spasms that wouldn't allow her to get her breath. Because of how PALS and CALS share their experiences here, and I've been reading...
  10. Buckhorn

    Nearly 6 months S/P Dave's death

    Just checking in to say hello to all the brave warriors out there, both PALS & CALS. Jan. 4th will mark 6 months since Dave's passing. I've been doing remarkably o.k. I've been pretty successful on maintaining my focus on the positive and that The Beast took over our lives later in ife and that...
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