cals

  1. M

    ALS anxiety as a past CALs.

    Hi all. I hope everyone is doing as well as they can. My PALs passed last October just 9 months after DX. Obviously I am grieving deeply. Lately I have developed what look and feel like fasiculations in various parts of my body (I am very familiar with them due to my partner). Sometimes they...
  2. G

    Compensation for CALS

    Does anyone know if in the state of Michigan if CALS can be compensated for care giving? My sister in law who helps with the majority of cares is the primary care taker of my brother who has ALS. She works at home for the health benefits and provides care. I know this is a very difficult...
  3. Tomswife

    Nap. CALS learn to nap

    I read once that a full night of uninterrupted sleep is a modern concept. In days gone by you rose during the night to check the house, people, animals, etc. I would assume walking around in the cold with a candle stick would wake anyone. CALS learn early on to take naps whenever and...
  4. Tomswife

    The homecare dilemma...only CALS can give meds

    PALS needs meds, as needed. There is a schedule for some. But others are... as needed. The meds are administered via Peg or go under the tongue. The aides cannot do this. I have been getting about 4 hours sleep for weeks. I am trying to find private pay nurse to work overnight. But...
  5. Tomswife

    CALS need sleep

    Pic
  6. Tomswife

    PALS or CALS

    Is there a way to know if a member is a PALS or CALS. If I click on their name I see their stats but that's it. Thanks.
  7. KimT

    Helpful things for PALS/CALS

    Nikki started a thread several years ago and we added more suggestions of things that have helped. We had originally posted it in the PALS section, but I thought it might get more attention in the general section...
  8. R

    Past CALS Rollcall

    I find that I sometimes I want to give a quick update but it doesn't seem worth starting a new thread. And I miss hearing updates from the past CALS that were so helpful to me over the last several years. So I figured I'd start a "rollcall" thread for us past caregivers. It has been over 7...
  9. Tomswife

    CALS not ready for my close up

    I wore my small hoop earrings for a week. Then one night I took them off and put them on the bed side table. I went to move them over to the dish on the dresser where I keep my casual jewelry. I noticed....they don't match. Not even close. Are you also finding you are not ready for a close...
  10. M

    New CALS - totally broken-hearted

    Hi everyone. Just starting a thread here since my beloved partner aged just 55 was diagnosed on Thursday the 12th of January. I had a previous thread on the "could this be ALS forum" here: Beginning diagnostic journey, pretty sure it is ALS, crippled with sadness and fear, general advice please...
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