one up/one down

[DgtofTNfan]

CJ I have no doubt your hubby meets the criteria for a device and the top of the line one at that. The SLP that evaluated my Dad only saw him for 1 visit. She only brought the Dynavox. I thought she should have given him a choice but she assured me the Dynavox was the best. Dad was not tech capable like your hubby and probably would have just been overwhelmed with more than one choice. She called me for a couple of other questions and then submitted her paperwork. It was returned for lack of documentation in 1 area and she re-submitted. She expected it would take about 4 weeks, claiming ALS diagnosis was given a priority, however it took about 2 months.

You would think that given the distance you live and that he was able to use multiple devices that she would be able to cover the required documentation and that if she sent him home with 2 devices, she would be prepared either way. As you mentioned she is probably use to kids and not experienced with pALS. Unfortunately I find that not enough health care workers have experience with ALS outside of the clinics themselves. Hopefully she will learn from the feedback from you and be better prepared for the next person. It is unfortunate however that you have to educate her when she is the professional. I hope this works out in a way that is least taxing on your hubby. I like the webcam idea if needed.

Oh and in regards to the buttons..... you can upload pics or whatever to use as buttons and I believe if programmed, it could dim the lights...

 

[indigosd]

emm O dep tez ot esssshhhhhh epf vjev O piif e cohhis vsuuq ug Nupliz't! Sinincis vjev zua jewi e jepf ug tviim ipdmutif op vjev wimwiv hmuwi! jaht

 

[brooksea]

Huuf upi Fepe! "fon vji mohjvt!" Ov'f ci hsiev og ov duamf emtu wedaan!

Cimoiwi ni Lev Nesoi! O'n puv mivvoph vjot upi gmz apfis vji sefes!

 

[DanaLRazo]

DK,
Xi jewi e Fzpe E Wuy tovvoph op uas gsupv suun op e cuy up vji gmuus epf ov't ciip vjisi gus ecuav 5 xiilt! Xi katv ati vji umf vsodl vu dunnapodevi... veml us tohpem. Mogi xuamf ci e movvmi ietois og ji xetp'v tu tvaccusp epf hewi ov e djepdi. Up e feomz cetot xi esi puv apfistvepfoph iedj uvjis epf ovt wisz gsatvsevoph. O haitt xjip vji voni dunit epf ji xepvt vu howi ov e vsz, ji xomm.

 

[brooksea]

Fepe S,

O giim zuas qeop.

 

[brooksea]

Tu pux O'wi ciip ifadevif egvis nz sepvoph ineom vu vji Dmopod. Eqqesipvmz vjot zuaph mefz (vji TMQ) ot vji upmz upi vjiz duamf gopf vjev xet xommoph vu veli up qEMT epf vji vidjpumuhz piifif vu jimq vjin. Vjot xet vumf vu ni cz vji haz ev EMTE. Vji Dmopod, eqqesipvmz, fof puv jewi vji situasdit vu siqmedi vji iydimmipv TMQ vjev migv gus vji WE.

Xi xomm jewi vu eddunnufevi jis. Vjeplgammz, tji jet ehsiif vu woix jon atoph vji IB Lizt woe Xic Den. Juqi xi dep hiv ov tiv aq. Vji EMTE haz qistaefif jis vu fu vjot.

O'n tvomm aqtiv, vjuahj, vjev tji fofp'v demm ni/jatcepf qistupemmz vu miv at lpux! Vjev ot puv sohjv!

Xi esi e "movvmi" ossovevif sohjv pux! Nz jatcepf katv xepvt vu hu fuxp vu jis mudevoup epf "qsuwi" ji dep ati vji fiwodi epf ot tu gsatvsevif. Cav ji fuitp'v siemobi vji eqquopvnipv duamf ci e muph voni exez. (Puv veloph jot nifodevoup gus IM - PUV GAP!)

 

[brooksea]

ZIT! Vji xicden vjophz xuslif! Tji eqqsuwif IB Lizt! Tvsitt epf nusi tvsitt, nz jatcepf xet tu tvsittif! Ji't tu vosif pux ji dep jesfmz gapdvoup epf xotjit ji jef vji IB Lizt [C][O]pux[/O][/C].

[O]O'n vimmoph zua gumlt, z'emm jewi vu wuodi zuas dupdispt. [/O] (Wuodi vjin juxiwis zua xotj, cav vjsuxoph ep ephsz sepv op vji noy tunivonit jimqt!) [O]Og zua fup'v, zua'mm ci migv op vji fatv.
[/O]
O xet vumf (cz vji iwis tu jimqgam EMTE vidj haz), vji jief pasti ev Inusz EMT Dmopod [O]NEFI[/O] vjot jeqqip egvis opraosoph ecuav vji tovaevoup xjip O ineomif jis! MUWI VJEV MEFZ! O'n tasi nz jatcepf xomm jewi tuni eqqsidoevowi qjsetit katv gus jis xjip xi hiv vji dunqavis epf txovdj! O'n emtu tasi vji EMTE haz jef e jepf op ov vuu!

O fifodevi vjot tuph vu jis:

YouTube- The Isley Brothers-Who's That lady

Dep'v vjopl ug e tuph gus jon ziv! MUM Nezci tunivjoph moli "Xju't Vjev Vidjz"

 

[pepsiman]

Zua lpux xi xeovif epf xeovif up iwiszupi imti. Vjip op Tiqvincis vji Fudvus deni vu uas juati, vuul upi muul ev Mob epf tohpif ep inishipdz usfis gus vji Fzpewuy vjev xi jef emsiefz qodlif uav. Fimowisz xet ecuav 3 xiilt mevis. Tvomm, ov xet vuu mevi vu ci ug epz tohpogodepv ati.

Fodl

 

[brooksea]

Vjuti C@$#^&*$! Civ zua xisi vjoploph, "Vjepl zua wisz nadj! Dsz!" Tu wisz tussz Fodl.

Vji EMTE vidj siq xet vemloph ecuav jux pu TMQ xomm duni vu vji juni epf vjiz esi vszoph vu djephi vjev gus EMT qevoipvt.

O jewi siemmz gimv ev vji nisdz ug vjiti qiuqmi. Vjiz fu puv siemobi xjev XI esi fiemoph xovj. Ov ot puv katv vji qistup taggisoph xovj EMT! O demmif epf dupvedvif woe ineom ecuav e jemg fubip TMQt op uas sihoup gus jimq epf puv upi demmif us ineomif ni cedl! Vjiti xisi dupvedvt O jef tiesdjif gus up vji opvispiv gsun nifodem gedomovoit piescz. Vji upmz sietup O dupvedvif vjin xet cideati vjiz jef eft up fotecomovz tovit tvevoph vjiz xisi tqidoemotvt xovj eahnipvevowi dunnapodevoup, tiswoph efamvt. O migv nittehit epf pupi demmif cedl. O siemmz vjopl vjot fotieti natv ci vuu tdesz us vuu opdupwipoipv. Opdupwipoipv! Vjev't ov! Ov katv deni vu nopf. Vji EMTE vidjz nipvoupif jux TMQt fup'v ataemmz jewi vu tvesv xovj upi fiwodi gus e qevoipv epf nuwi up gsun vjisi moli xovj EMT! JE!

Jeqqz gus nz nz jatcepf, cav ephsz ecuav vji tztvin epf vji qiuqmi xi simz up vu neli ov xusl!

 

[hopeful warrior]

Huf cmitt at emm. O'n tu tussz gus emm vji tvsitt zua epf zuas jatcepf jewi jef vu ipfasi. Vjev quus nep jet ciip mowoph xovj wisz veyoph ottait gus nupvjt. Vjeplgammz, vji nedjopi jet ciip usfisif epf qiuqmi jewi duni vu evvipvoup. Juusez gus zua epf zuas jatcepf.

Zua lpux, ov ot tu gsatvsevoph xjip qiuqmi fup'v hiv ov. Cav, xi emm lpux uas uxp iyvipfif genomoit ugvip fup'v "hiv ov." Juxiwis, vseopif qsugittoupemt fiemoph op vjot esipe tjuamf ci e foggisipv tvusz.

Juqigammz tappois fezt esi ejief.

 

[tdamess]

hmef vu jies , zuas pu upi vu nitt xovj huuf kuc

 

[DgtofTNfan]

Xez vu hu DK!