Nerve entrapment VS. ALS

[LeprechaunSean]

I think the twitching gets much worse as my anxiety increases, usually at night. This is all pretty new to me, I have never been an anxious person or anything remotely like a hypochandriac, in fact I didn't go to the doctor for nearly a decade. Having said that, I am beginning to hyperanalyse every twitch or percieved abnormality in my body.....kind of like a vicious cycle. The twitching has been in my right arm all year, but at night it will spread throughout my body, and then when I relax it goes back to just my arm. The report just notes that there were fasics in my arm and back.

 

[LeprechaunSean]

I'm also doing my follow up visit from my spinal tap this friday so we'll see what the Doc has to say there.

 

[momofsixkids60]

If you send the full report to Wright he will explain what the numbers mean. As for the self an alyzing, I would say STOP IT (not meant to be cruel); although that is easier said than done!

Try calming yourself by writing your questions down and then leaving them there. Shut the computer down or at least from me dical sites and Try focusing your energy on something else. Btw, the technician that hinted at als, should be fired. That is not their job.

Good luck on Friday and please let us know,

 

[LeprechaunSean]

Well I had my follow up from the spinal tap and it went exactly as expected. The results were all good(normal). But of course als doesn't show up on any test, so at this point I am into a wait & see period. He said I am classified at this point as "possible als." Which from my point of view also means "possibly not als". I am actually moving back home because of all this, so I have gathered all my medical records and will have to find a new neurologist to start working with. I was thinking I should tell them my symptoms first before I show any of my records just to see what they say....

 

[laurel]

Hi Sean,

I would recommend that you see a neurologist specializing in neuromuscular disorders. My husband went through a lengthy misdiagnosis process where the first neurologist who did EMG and nerve conduction said all was well--husband was referred by GP due to complaints of loss of strength in rt. hand. Husband returned a year later to same neurologist who now said carpal tunnel. Hubby had surgery for release of two nerve inpingements--got worse after surgery. Now could not use eating utensils or turn a key. Hubby went to a specialty referral clinic and saw a orthopedic surgeon specializing in hands. That specialist said "you have a progressive muscular disorder". Back to first neurologist for the third time. He said he wasn't sure about what was going on i.e. ALS, MMN, etc. etc. He was referred to a neuromuscular disorder neurologist who within a couple of weeks of testing diagnosed CIDP--MADSAM. Wish we had gone to the neuromuscular disorder neurologist in the beginning as husband has permanent damage due to wasted time getting appropriate treatment.
Laurel

 

[laurel]

Sean I posted to you, but it went to moderation. Basically I suggest the importance of seeing a neurologist who specializes in neuromuscular disorders based on my husband's experience.
Laurel

 

[LeprechaunSean]

Thanks Laurel, I've contacted an ALS society where I'm going and they have recommended neurologists, but I will do my own search for a neuromuscular disorder specialist. I have learned that getting to the right people makes a big difference.