forge
New member
- Joined
- Apr 23, 2024
- Messages
- 1
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
Before diving into what I am experiencing, I just want to thank people for reading and sharing their input.
I am 35 and about 6 weeks ago started experiencing numbness in both hands while sleeping, regardless of sleeping position. My hands were also incredibly stiff each morning. I didn't think much of it. I then started to develop a tremor mostly in my left hand but occasionally would notice it in my right. At that point I reached out to my primary care doctor who referred me to a neurologist.
In the few weeks it took for my neurology appointment I started to experience twitching mostly in my left arm. I also noticed that especially early in the morning some of my motor movements with my left arm felt weird (not entirely sure how to explain it-twitchy, robotoic...sorry can't really put it into words). To this point ALS was not even crossing my mind.
When I met with the neurologist he chalked everything up to anxiety but referred me for an MRI to rule out MS. The thought of MS caused some significant anxiety. The MRI came back clear but over the course of the week between my MRI and follow up I continued to experience the same symptoms and new symptoms. My left arm started to feel a bit weaker, I convinced myself it was probably just anxiety. My tremors and shaking in my left hand and arm became more pronounced too. My MRI came back clear but the Neuro was incredibly dismissive when I asked about what I was experiencing amd again chalked it up to anxiety. He finished my appointment by saying, wait 6 weeks and if you're still having symptoms we'll test to rule out ALS and other neurological disorders.
I'll be honest to that point, I had not even thought of ALS. I had a childhood friend die from ALS at 34 last year and the thought of it even being a possibility has sent me into a bit of a tailspin. Over the last couple weeks my anxiety over not knowing has been debilitating at times. Over the last two weeks, additional symtpoms have shown up. I started noticing pretty consistent twitching/ fasciculations in my left calf. My calf also feels incredibly tight. Both of my legs feel tired, heavy and weak at the end of the day and honestly I haven't don't much over the last few weeks because of the anxiety. I have also started to experience internal vibrations for the past 4 nights.
I was able to bump up my neurology appointment a few weeks but the stress and anxiety has been unbearable. Any input of thoughts...good or bad would be appreciated.
Thanks!
I am 35 and about 6 weeks ago started experiencing numbness in both hands while sleeping, regardless of sleeping position. My hands were also incredibly stiff each morning. I didn't think much of it. I then started to develop a tremor mostly in my left hand but occasionally would notice it in my right. At that point I reached out to my primary care doctor who referred me to a neurologist.
In the few weeks it took for my neurology appointment I started to experience twitching mostly in my left arm. I also noticed that especially early in the morning some of my motor movements with my left arm felt weird (not entirely sure how to explain it-twitchy, robotoic...sorry can't really put it into words). To this point ALS was not even crossing my mind.
When I met with the neurologist he chalked everything up to anxiety but referred me for an MRI to rule out MS. The thought of MS caused some significant anxiety. The MRI came back clear but over the course of the week between my MRI and follow up I continued to experience the same symptoms and new symptoms. My left arm started to feel a bit weaker, I convinced myself it was probably just anxiety. My tremors and shaking in my left hand and arm became more pronounced too. My MRI came back clear but the Neuro was incredibly dismissive when I asked about what I was experiencing amd again chalked it up to anxiety. He finished my appointment by saying, wait 6 weeks and if you're still having symptoms we'll test to rule out ALS and other neurological disorders.
I'll be honest to that point, I had not even thought of ALS. I had a childhood friend die from ALS at 34 last year and the thought of it even being a possibility has sent me into a bit of a tailspin. Over the last couple weeks my anxiety over not knowing has been debilitating at times. Over the last two weeks, additional symtpoms have shown up. I started noticing pretty consistent twitching/ fasciculations in my left calf. My calf also feels incredibly tight. Both of my legs feel tired, heavy and weak at the end of the day and honestly I haven't don't much over the last few weeks because of the anxiety. I have also started to experience internal vibrations for the past 4 nights.
I was able to bump up my neurology appointment a few weeks but the stress and anxiety has been unbearable. Any input of thoughts...good or bad would be appreciated.
Thanks!
