jm1879
New member
- Joined
- Aug 17, 2009
- Messages
- 8
- Reason
- Other
- Country
- CA
- State
- ontario
- City
- cambridge
Hi, I am a 43 yr old female with neurological symptoms for a few years. Some, such as swallowing issues and dragging my left foot and tripping over it and hand weakness i have had for maybe 2 or 3 years. I didn't think too much about them until last fall (oct 2008)(why will it not let me type the number eight?) i began having extreme muscle weakness in legs and feet.
This has now progressed to a significant impairment and also for the past few months i also have muscle twitching, fasciculations, tremors.
I have seen many, many doctors and am finally seeing Dr. Vera Bril at Toronto General Hospital who has done nerve conduction and emg studies as well as some sensory studies. Due to some abnormalities (they haven't been more specific) she has ordered some very in depth lab testing which i am told will take up to 8 weeks for the results.
Needless to say i am stuck here in limbo not knowing but also most of the time really deep down knowing that something is seriously wrong.
How many people who have finally gotten a diagnosis feel like they really knew what was going on before the doctors told them?
Most of the time when researching my symptoms and on really bad days when i feel so weak i can barely take a deep breath or walk without the aid of crutches or walls i am convinced that it has to be als.
every couple of weeks i have a better day and think maybe it's just diabetic neuropathy or b12 or fibromyalgia.
waiting and hoping i don't have to get to know you lovely people better (no offense:-?)
Jackie
This has now progressed to a significant impairment and also for the past few months i also have muscle twitching, fasciculations, tremors.
I have seen many, many doctors and am finally seeing Dr. Vera Bril at Toronto General Hospital who has done nerve conduction and emg studies as well as some sensory studies. Due to some abnormalities (they haven't been more specific) she has ordered some very in depth lab testing which i am told will take up to 8 weeks for the results.
Needless to say i am stuck here in limbo not knowing but also most of the time really deep down knowing that something is seriously wrong.
How many people who have finally gotten a diagnosis feel like they really knew what was going on before the doctors told them?
Most of the time when researching my symptoms and on really bad days when i feel so weak i can barely take a deep breath or walk without the aid of crutches or walls i am convinced that it has to be als.
every couple of weeks i have a better day and think maybe it's just diabetic neuropathy or b12 or fibromyalgia.
waiting and hoping i don't have to get to know you lovely people better (no offense:-?)
Jackie