Robynnblue
Distinguished member
- Joined
- May 7, 2010
- Messages
- 129
- Reason
- Learn about ALS
- Country
- US
- State
- Indaiana
- City
- Indianapolis
I am just sitting here unable to sleep. Cant seem to shut my brain off these days, so I thought I would come on here and vent. I've been reading alot of the other PLS post from other people, and it seems like just about all of you have had to go through what I am rite now, with the waiting for some Neuro to believe that there is somthing wrong with me. The most frustrating part of it, is the fact that I have brisk reflexes and ankle clonus and he is telling me its coming from my anxiety, hmmm. intresting. On top of the hyper reflexes, I am also experiencing terrible balance issues. No clinical weakness yet, but do I ever feel weak all over. I've been getting such conflicting information from different directions, I dont know who to listen to anymore, not that anyone is trying to give me wrong info, but everyone says a little something different. If anyone does feel like responding to my just venting post, can I ask, If you yourself have brisk reflexes, are the all over or just localized to certain limbs? If you have weakness, is it allover or just in a limb or two, or is it just a fatigue fealing that you experience with PLS? And the balance issues, do you feal them just while walking or is it while sitting as well? These are just the questions that keep running through my head, 24/7. Huggs to all